Have any of you had success with a Neurologist? Much research points to our Central Nervous & "sub category" systems as playing a huge role in FMS, explaining how pain processing, immune system, digestive tract, multiple organs, etc. can be compromised & NOT work properly
Has the Neurologist done specific testing? Has she/he set you on a path that your GP or Rheumatologists have not?
The Rheumatologist in my medical group doesn't treat FMS, as it's no longer considered an autoimmune… read more
I have seen two different Neurologists. No luck hete
Has anyone experienced sleep paralysis? Last 3 nights as i have been falling asleep. I feel like everything is spinning around in my sleep, had wierd hallucinations and then feel paralysed and want to wake up but cant. Obviously i do wake up but i feel scared and have to turn lights on to calm down. Think had it before but not 2 or 3 nights. Had cortisone injection and huge flare up, been off work. Not sure if that is contributing to it. Wierd!!
Never experienced this i was long time ago taking amytriptiline
Since I was about 13, so only 10 years ago, I all of a sudden had pain everywhere in my neck, back, shoulders,shoulder blades, lower back, and knees and can crack them and I apparently have arthritis in my neck I'm only 23... For about 10 years everyone, there brothers and there mothers including my parents would tell me I was saying that I'm in pain and it hurts all the time to breath lay down sit up stand sit everything they would tell me it's all in my head so it got to the point I believed… read more
To all the younger people who have been diagnosed with Fibromyalgia, it was never a disease before, it was a symptom of the Arthritis family, but, now it is a disease. People who tell you it’s all in… read more
I have started a nightshade elimination diet a week ago, and despite some painful days after being active, there seemed to be a positive change. A week doesn't give me any sure conclusions, but had less heartburn, fog, and arthritis. Last night a roommate made oxtail soup, and I asked him if it had any nightshades and he said no. After eating a good bit of it he mentioned the peppers he used and I realized my diet regimen was blown
Today my back is completely stiff and arthritic and… read more
I avoided nightshades for a while but it did nothing. I love alot of them and use them to roast because of my diabetic gastropareisis. Makes no difference for me.
Has anyone become lactose intolerant since developing fibro? Not sure if it's one of the many symptoms of if it's an unrelated condition
I only the last few treats have suffered with lactose intolerance. Will try lactaid products
So I've noticed that my body aches tend to really flare up when it rains. Does anyone else have this problem?
Yes my body is like BBC weather news
Is anyone suffer from sleep paralysis?if so do you know what triggers it and what is your experience like?
Just happened to me this morning. Couldn't even call out to my hubby. Could not talk. Very scarey! Just a new symptom to add to my list!!!
It never ceases to amaze me of symptoms that make no sense. So I am looking for a list that we are able to share. The one that got me was my hair hurt. I could barely brush my hair. Even to touch was like razors a fybro symptom.
Hey Claire and penguin mom. Those odors I also get. Thought it was something else. Comes and goes at the oddest of times. Sometimes in a group of people and often when I'm alone which is most of the… read more
Sometimes when I first wake up in the morning my arms feel super weird: like shaky and weak. It is totally random and happens before I even get out of bed when i am still half asleep. If i try to pull my blanket back up over my body i notice it. Once im fully awake and get out of bed it is gone. Anyone experience anything similar?
mornings are the worst and it can take me a very long time to get out of bed