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Has anyone else had there personal independent benefit stopped

As anyone had either their d.l.a / personal independent payment stopped after their review my mobility isn't great and i need help to get in and out of the shower im scsred that i may fall as i have done in the past. I struggle with preparing meals for myself due to my hands constantly being numb

posted about 5 hours ago by A MyFibroTeam User

Newly diagnosed

After numerous normal blood tests and a long long road of not giving up because i knew something was not right w my body. My pcp diagnosed me w fibromyalgia. He wants me off all meds until I see a rheumatologist. To have a clean system besides 2 being klonopon for anxiety/sleep/restless leg and adderall for ADHD but helps with the chronic fatigue. I was on Prozac and tried cymbalta (hated it) I plan to go back on Prozac after rheumatologist visit.
My question is

posted about 5 hours ago by A MyFibroTeam User
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I also wanted to add, you must keep moving. The fibromyalgia gets worse if you stop. Walking, swimming, whatever. Keep moving.

posted about 4 hours ago

What's the funniest thing someone has said to you about Fibromyalgia?

For example my granddaughter when she was three years old and I told her my knees didn't work very well so I couldn't get upstairs to play in her room with her she said, "But Granny, it's healthy for you to go upstairs twice a week, you can do it on Mondays and Thursdays..." Which are the days we used to look after her!
When I stopped laughing I told her that it was still too sore, she was persistent and told me I could then go up on my bottom… read more

tags: Laugh cry sadness fun

posted about 7 hours ago by A MyFibroTeam User
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I also met a GP who wasn't aware of my physical problems who pondered on the reason someone "...would create and hang on to pain that simply isn't… read more

posted about 1 hour ago

memory loss while speaking

While speaking or thinking I get lost in my thoughts or completely blank out and lose my train of thought entirely to the point of where I can’t remember where I started. I get horribly embarrassed and sometimes people get very impatient with me.
Does this happen to anyone else?
I’m only 45 years old. I’m too young for these kind of memory issues. I cried and cried tonight thinking my 16 year old daughter must be so ashamed of me. She hasn’t been bringing her friends around lately. She… read more

posted about 7 hours ago by A MyFibroTeam User
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I have that more and more. Concerning sometimes. I just laugh at myself.

posted about 7 hours ago


Does anyone ever experience a low frequency humming sound in the ears?

posted about 7 hours ago by A MyFibroTeam User
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Tinnitus, unfortunately it’s quite common among us fibro warriors.

posted about 2 hours ago

Has anyone else had friends and family treat them like a hypochondriac and stop associating with you?

I really try not to complain or talk too much about what really is going on but I still feel as though I'm thought of as less than or a PIA. What do you all think? Tender day is all.

posted about 8 hours ago by A MyFibroTeam User
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Yep, Idk that hspoened yo people. Maybe I didnt tell them I had chronic fatigue. No one seemrd to care.

posted about 3 hours ago

Has anyone had flu vaccine which had triggered a fribro flare up?

posted about 11 hours ago by A MyFibroTeam User
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Yes lot if vacines from childhoidb & trips to certain parts of the worlds.

posted about 3 hours ago

What have your learned or gained by having Fibromyalgia?

I just thought that there is a positive side that is so rarely talked about with Fibromyalgia.
For example since I've been disabled my views and experience have widened. I now see things like the way I respond to others although unintentional, it was not always so kind. I have changed in this way and find it much easier to accept others as they are and to believe them and their own experiences of Life and society.
Do others feel this?

posted about 14 hours ago by A MyFibroTeam User
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I try to learn something new each day. If I hear or see something interesting I google it. New knowledge gives us power..Liz

posted about 9 hours ago


Does anyone here have acne or skin problems? Also is follcilitus associated with fibro.. i think i spelled it wrong but its a condition where ingrown hairs come from shaving or an infection from sitting in tubs wearing tight clothing etc i have bad acne and redness all over my lower back and bottom.. i hate it. Any advice will help thanks.

posted about 15 hours ago by A MyFibroTeam User
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I have red spots all over my arms and chest. I saw my dermatologist years back and he tested me for Lupus came back negative. I think it's a Fibro… read more

posted about 7 hours ago

Has anyone heard about the FM blood test and research study and potential vaccine?

The vaccine is supposed to revert the two immune system bio-markers back to normal levels. Imagine no more symptoms... I am volunteering for the study. Already have confirmation that my bio-markers are abnormal which is a positive diagnosis. It's great to finally have a blood test and be able to truly diagnose Fibromyalgia.

posted about 17 hours ago by A MyFibroTeam User
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Google FM Test. @A MyFibroTeam User

posted about 13 hours ago
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