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Has anyone heard of or been diagnosed with Mast Cell Activation Syndrome? I've just been referred to an allergy immunology specialist to test me for this and I find it interesting that Fibromyalgia (not just the symptoms of but fibromyalgia in itself) is considered a symptom of this disorder. Curious if anyone else has encountered this or has been diagnosed with this. From what I'm told it's hard to diagnose and takes a long time and a lot of doctors ruling stuff out to even suspect.
I’ve heard about it. It’s just becoming more diagnosed or an accepted diagnosis.
Does anyone get burning of the face that is actually visible? Everything I read is that Fibro is the ‘invisible illness’ but mine isn’t, I burn with pain and actually visually burn too, so confused, the medical profession just give no answers 😢
Yes. I'm going through it now for the past few days . Face burns and lips too. Feel sunburned.
Hi, I have lost so much hair in the last 7 months, but I have had FM for over 20 yrs , is this a symptom. Thanks.
ah, Nexium is a proton inhibitor but there are other types of meds for acid/reflux, & few other meds also cause hair loss. & my kitten could be your offspring - she is 9mths old...
That sucks!
Mast cell activation syndrome is when a type of white blood cells - mast cells, don't react in the right way to stimuli. It is thought that up to 70% of people in the 1st world have some form of it. It made me think if Fibromyalgia could be one such condition caused by these faulty cells?
What do u think? X
Research is beginning to show fibro patients brains scan differently from those without it.
Isn't this absurd that our teeth ache when all is well with them or without them..
I was hoping to not be on gabapentin forever, now I don't know 😕..thank you Bobbie 3 for getting back to me. Hugs 🫂
Does anyone know if the SingleCare Pharmacy Saving Card works with insurance or is it only for people who do not have insurance?
I use good rx as well. and no, you can't use another insurance card with it. it seems to be the same with most cards like that
I have fibromyalgia- childhood onset, celiac diseases childhood onset, recently diagnosed with non genetic rheumatoid arthritis, with Multiple Sclerosis also suspected!
Hashimotos, vitiligo, fibromyalgia, IC
