Wow and you're first to ever mention it. Ive had those kinds of problems all my life and never even heard of it before. Keep me posted please

I’ve heard about it. It’s just becoming more diagnosed or an accepted diagnosis.

Wow! First for myself as well. I’m definitely interested in following.

Yes, and that’s great that you were referred and will be tested! Might be helpful to see a dermatologist as well and they could work together to hopefully diagnose and rule it out for you faster. I hope you can come to the conclusion soon. There is a dr who talked about it in a video talk with the EDS society on instagram. Sometimes Mast cell can be secondary to EDS. I was hoping to be tested also but was instead tested and found positive for Chronic Autoimmune Urticaria and they didn’t look any further. Hoping to with new drs now that we’ve moved. Please keep us all posted, I hope all goes well!

I have not heard of this being connected to fibromyalga before but I do have some autoimmune problems as well and have been taking allergy pills for years. I'll have to look into this as a few people have asked if my kids have Mast Cell Activation Syndrom with all the allergies they have