Connect with others who understand.

sign up log in
About MyFibroTeam

Hiding Fibro Symptoms

Posted on April 06, 2018

Many MyFibroTeam members keep their fibromyalgia symptoms a secret. Members talk about hiding fatigue, body aches, brain fog, and other symptoms of this largely misunderstood disorder. “I don’t go into detail because most [people] wouldn't understand 😳🙄,” lamented one woman. “I just stay quiet, there’s no use getting into arguments anymore!” said another in response to hurtful comments by her spouse. One woman tells people: “I have chronic pain. That gets a better reaction.”

The physical, mental, and emotional impact of fibro has challenged many members’ marriages, friendships, and even employment relationships. One woman went on disability after working 38 years as a nurse because "I was too ashamed to admit fibro was the reason for my condition.” Another, who lost her job because of fibro symptoms, wrote: “I don’t mention it to any [potential new] employer, that’s for sure.”

MyFibroTeam members share advice for the times you do want to discuss how fibromyalgia impacts your life. One member shared her comeback to insensitive questions: “No, I don’t have the flu, what part of chronic and debilitating don’t you get after 10 years? I’m in too much pain to educate people who don’t want to know.” Another member offered the following advice for helping famiy understand: “Do the best you can, maybe provide reading on fibro to help family members understand. And when all else fails, a dirty Bloody Mary with olives is pretty good! Keep your head up!”

On MyFibroTeam, the social network and online support group for those living with fibromyalgia, members talk about a range of personal experiences and struggles. Hiding fibro symptoms is one of the top 10 topics most discussed.

Here are a few question-and-answer threads about hiding symptoms:

How do you cope when a family member does not understand and accuses you of faking it?

Do you get sudden pains like someone is sticking a pin in you?

Do you hide your pain or hide the fact that they have fibromyalgia?

Here are some conversations about hiding symptoms:

I’m tired of pretending I’m okay when I’m not...

I have to pretend to be alright at work when all I want to do is curl up in front of the TV, munch on some popcorn, and relax.

I'm mad that I am unable to function as I used to. I try desperately to put on a smile and pretend that all is well.

Can you relate?

Have another topic you'd like to discuss or explore? Go to MyFibroTeam today and start the conversation. You'll be surprised just how many others may share similar stories.

Feel free to ask a question here.

A MyFibroTeam Member said:

Thank you, Michele! I will start being more active here. I am excited about the love and support I'm seeing between the other members and think this is… read more

posted 27 days ago

hug (6)

Recent articles

Bsp af 6
Thousands of members of MyFibroTeam connect with one another and read each other's stories to...

Four Books About Fibromyalgia You Should Read

Thousands of members of MyFibroTeam connect with one another and read each other's stories to...
Coronavirus
Article written by Kelly Crumrin Those of us living with pre-existing, chronic conditions such as...

Canceling Is Kindness: Keeping Safe From COVID-19 With Fibromyalgia

Article written by Kelly Crumrin Those of us living with pre-existing, chronic conditions such as...
Mht ad overview thumb
Article written by Kelly Crumrin Fibromyalgia is a chronic condition that causes widespread pain,...

Fibromyalgia – An Overview

Article written by Kelly Crumrin Fibromyalgia is a chronic condition that causes widespread pain,...
Mht ad treatments squareformat
Article written by Kelly Crumrin Fibromyalgia medications fall into three main categories:...

Treatments for Fibromyalgia

Article written by Kelly Crumrin Fibromyalgia medications fall into three main categories:...
Mht ad symptoms thumb
Article written by Kelly Crumrin No one knows how fibromyalgia develops, but many researchers...

Symptoms of Fibromyalgia

Article written by Kelly Crumrin No one knows how fibromyalgia develops, but many researchers...
Mht ad cause thumb
Article written by Kelly Crumrin The cause of fibromyalgia is unknown. Some researchers believe...

What Causes Fibromyalgia?

Article written by Kelly Crumrin The cause of fibromyalgia is unknown. Some researchers believe...
Mht ad thepathtodiagnosis2 thumb
Article written by Kelly Crumrin The path to a diagnosis of fibromyalgia can be a long and...

Fibromyalgia – The Path to Diagnosis

Article written by Kelly Crumrin The path to a diagnosis of fibromyalgia can be a long and...
Setting intentions for 2020 with fibromyalgia
Eat healthier. Exercise more. Learn a new skill. Pay off a credit card. Many of us have made...

Setting Intentions for 2020 With Fibromyalgia

Eat healthier. Exercise more. Learn a new skill. Pay off a credit card. Many of us have made...
Practicing gratitude with fibromyalgia
This time of the year can be overwhelming with expectations around the holidays, and living with...

Practicing Gratitude with Fibromyalgia

This time of the year can be overwhelming with expectations around the holidays, and living with...
How to enjoy the holidays despite fibromyalgia
Living with fibromyalgia may change your holidays, but you can still have enjoyable and...

How to Enjoy the Holidays Despite Fibromyalgia

Living with fibromyalgia may change your holidays, but you can still have enjoyable and...
MyFibroTeam My fibromyalgia Team

Two Ways to Get Started with MyFibroTeam

Become a Member

Connect with others who are living with fibromyalgia. Get members only access to emotional support, advice, treatment insights, and more.

sign up

Become a Subscriber

Get the latest articles about fibromyalgia sent to your inbox.

Not now, thanks

Privacy policy
MyFibroTeam My fibromyalgia Team

Thank you for signing up.

close