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Lack Of Understanding Regarding Diagnosis

Lack Of Understanding Regarding Diagnosis

How do people cope when a family member does not understand about the effects that fibromyalgia has on you, to the extent that you are being accused of faking it just to get out of work! When you try to sit down and discuss things you get told to 'shut up' or 'I have pain to and have to get on with it'! (Especially as this family member has been told options to treat pain but refuses treatment!)

A MyFibroTeam Member said:

I would normally download a list of symptoms and then a page that explains just what Fibro is and how it effects me print it and hand it to them saying if you want to understand what Fibro is then read this if you dont then stop with your comments and judgements.

posted 10 months ago
A MyFibroTeam Member said:

My strength comes from my Lord and savior Jesus Christ 🦋

posted about 1 year ago
A MyFibroTeam Member said:

I have a partner of 22 years..and we both have our own place.It works out great for me...I can rest in between visits..I don't have to cook everyday..or nature I am a when I lived with him..I could not stop myself from over doing it....and when we do visit..we have more quality time because I am rested..

posted over 3 years ago
A MyFibroTeam Member said:

I was diagnosed 18 years.(but as most of us realize,we have had it all a long).It is a hard realization.that most will never understand,what it is like dealing with Fibro on a daily basis.For them it easy to forget,in 5 minutes,and say ." ( by the way can you do this for me?,,,,even after just saying ."I hurt.I am so done").In reality,I guess unless you experience.something,hands on, its impossible to step inside someone else's shoes).It is so frustrating ,I know,but since this is a "knowing" now after 18 year..all I can do is protect myself.If I feel the pain rising ,I excuse myself and say I am going to go lay down for awhile.In my room ,I have everything,that makes me happy...snacks LOL..Music..the phone to call a Fibro friend...good books...etc..When the pain level goes down and I feel human enough to smile,or have a conversation..I come out of my room.Otherwise I am faking it..,and I really don't hear anything they say..when I am exhausted..or in pain. .Pain takes my attention away from most things going on in the its better I go take care of myself..I think this is the answer...think of thing..that you can do go peace and alone..then come back ..Gentle Hugs your way..I truly understand..!!

edited, originally posted almost 3 years ago
A MyFibroTeam Member said:

I wrote this poem hoping my oldest son would maybe understand a little. In his mind I suppose to be the woman that everything and never stopped. He tells me that you just have to get up and go. Thank y’all for listening

posted over 1 year ago
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