Connect with others who understand.

sign up log in
About MyFibroTeam

Chronic Fatigue Syndrome Patients Get Short Shrift in ERs

Posted on March 18, 2019

The study found that the main reason (33 percent) why CFS patients went to the emergency department was a condition called orthostatic intolerance. It occurs when a person feels faint when standing or sitting upright because not enough blood is reaching the brain and heart.

THURSDAY, Jan. 10, 2019 (HealthDay News) -- Many chronic fatigue syndrome (CFS) patients say they aren't taken seriously when they arrive in hospital emergency rooms, a new study finds.

It included 282 people with diagnosed CFS who completed an online questionnaire. Of those, only 59 percent had gone to the emergency department (ED) for treatment of CFS symptoms.

Two-thirds of the respondents said they would not go to an ED because they thought they wouldn't be listened to, or they had experienced previous unsatisfactory experiences.

Of those who did seek emergency care, 42 percent said they were told their CFS-related health complaints were all in their head, according to the Georgetown University Medical Center researchers.

"The high proportion of patients who were basically told, 'It is all in your head' by ED staff indicates that there is much misunderstanding and misgivings about the diagnosis of CFS," said senior investigator Dr. James Baraniuk. He's a professor of medicine at Georgetown and an immunologist who treats people with CFS.

"These patients should feel they are respected and that they can receive thorough care when they feel sick enough to go to an ED," Baraniuk said in a Georgetown news release.

Emergency staff and physicians require more training to better understand CFS, he added.

"An already available CFS Symptom Severity Questionnaire can be used in the ED to assist with the diagnosis of CFS, and to differentiate exacerbations of CFS symptoms from medical emergencies such as heart attacks or infections," Baraniuk said.

The study found that the main reason (33 percent) why CFS patients went to the emergency department was a condition called orthostatic intolerance. It occurs when a person feels faint when standing or sitting upright because not enough blood is reaching the brain and heart. Symptoms only improve when a person lies down.

"This is of importance because it provides a starting point for diagnosis and treatment by ED physicians," Baraniuk said.

"This condition is something that can be readily addressed by ED caregivers," he said. "There is a real need for physician education that will improve their efficiency in identifying and treating CFS, and in distinguishing CFS symptoms from other diseases in the exam room."

The findings were published Jan. 10 in the journal Open Access Emergency Medicine.

Chronic fatigue syndrome affects between 836,000 and 2.5 million Americans, according to the National Academy of Medicine.

SOURCE: Georgetown University Medical Center, news release, Jan. 10, 2019
Copyright © 2019 All rights reserved.

Here are some questions and conversations from MyFibroTeam:

Anyone else here absolutely fed up with people's responses to your chronic symptoms? Responding with things like: "Why can't you just ignore it?" "I get sick too." "Why don't you try this...?" "It is all in your head." Nothing is more disarming, or infuriating to me.

Has anyone else ever heard of orthostatic Intolerance? This describes most of my bizarre issues with fibromyalgia that makes doctors think I’m nuts

How do you know if you have fibro AND chronic fatigue syndrome?

The doctor's appointment went well. I am glad I have a doctor who works with me and believes me when I tell her my issues.

Have you been told you have chronic fatigue syndrome as well as fibro? Or have you experienced orthostatic intolerance? Share in the comments below!

A MyFibroTeam Member said:

Dizziness is another symptom of fibro

posted about 2 months ago

hug

Recent articles

Bsp af 6
Thousands of members of MyFibroTeam connect with one another and read each other's stories to...

Four Books About Fibromyalgia You Should Read

Thousands of members of MyFibroTeam connect with one another and read each other's stories to...
Coronavirus
Article written by Kelly Crumrin Those of us living with pre-existing, chronic conditions such as...

Canceling Is Kindness: Keeping Safe From COVID-19 With Fibromyalgia

Article written by Kelly Crumrin Those of us living with pre-existing, chronic conditions such as...
Mht ad overview thumb
Article written by Kelly Crumrin Fibromyalgia is a chronic condition that causes widespread pain,...

Fibromyalgia – An Overview

Article written by Kelly Crumrin Fibromyalgia is a chronic condition that causes widespread pain,...
Mht ad treatments squareformat
Article written by Kelly Crumrin Fibromyalgia medications fall into three main categories:...

Treatments for Fibromyalgia

Article written by Kelly Crumrin Fibromyalgia medications fall into three main categories:...
Mht ad symptoms thumb
Article written by Kelly Crumrin No one knows how fibromyalgia develops, but many researchers...

Symptoms of Fibromyalgia

Article written by Kelly Crumrin No one knows how fibromyalgia develops, but many researchers...
Mht ad cause thumb
Article written by Kelly Crumrin The cause of fibromyalgia is unknown. Some researchers believe...

What Causes Fibromyalgia?

Article written by Kelly Crumrin The cause of fibromyalgia is unknown. Some researchers believe...
Mht ad thepathtodiagnosis2 thumb
Article written by Kelly Crumrin The path to a diagnosis of fibromyalgia can be a long and...

Fibromyalgia – The Path to Diagnosis

Article written by Kelly Crumrin The path to a diagnosis of fibromyalgia can be a long and...
Setting intentions for 2020 with fibromyalgia
Eat healthier. Exercise more. Learn a new skill. Pay off a credit card. Many of us have made...

Setting Intentions for 2020 With Fibromyalgia

Eat healthier. Exercise more. Learn a new skill. Pay off a credit card. Many of us have made...
Practicing gratitude with fibromyalgia
This time of the year can be overwhelming with expectations around the holidays, and living with...

Practicing Gratitude with Fibromyalgia

This time of the year can be overwhelming with expectations around the holidays, and living with...
How to enjoy the holidays despite fibromyalgia
Living with fibromyalgia may change your holidays, but you can still have enjoyable and...

How to Enjoy the Holidays Despite Fibromyalgia

Living with fibromyalgia may change your holidays, but you can still have enjoyable and...
MyFibroTeam My fibromyalgia Team

Two Ways to Get Started with MyFibroTeam

Become a Member

Connect with others who are living with fibromyalgia. Get members only access to emotional support, advice, treatment insights, and more.

sign up

Become a Subscriber

Get the latest articles about fibromyalgia sent to your inbox.

Not now, thanks

Privacy policy
MyFibroTeam My fibromyalgia Team

Thank you for signing up.

close