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I have fibromyalgia since 2011 and I have been diagnosed with early signs of parkinson in 2022 with a second neurologist confirmation early this year 2023.
Wishing you lots of love & support. I hope your specialists take really good care of you and treat you well ♥️
Hugs 🤗 x
It's frustrating to navigate this disorder and yet everything hits harder. Then there's menopause lol
I recently consulted with a different rheumatologist who sent me to a neurologist and a pain specialist. The neurologist wants to do a sleep study. My problem though is the pain in my legs. I also have pain at times in my shoulders and neck, and I have arthritis in my right foot at the base of my big toe which is hurting a lot lately. In the past I have taken hydrocodone, but my former rheumatologist switched me to Tramadol. I was taking 300 mg per day. The pain specialist allowed me to… read more
I asked for a higher dose of tramadol until my surgery & after if they don’t send me home with any.
I was diagnosed with fibro in 2004 & neck issues got worse about 2007.
I have you name it, all the bad symptoms of fibromyalgia & I'm not able to hold a full time job. I have had this for 24 years now. I also have severe depression because I have lost my purpose of raising 2 daughters that are adults now. How do fibromyalgia people make it financially by themselves?
No husband, knew how hard it is to get on disability. Then got custody of my grandchildren and needed to work to feed them and keep a roof over their heads. It wasn’t fun and very stressful, I do t… read more
I must go ATM
I have an appointment dear I'll be back after 6pm Perth time.
God bless
Hi summer I live in Michigan been to the Mayo Clinic years ago for complex regional pain syndrome (CRPS) it’s a very nice place. Chronic pain, fatigue, brain fog, unable to sleep I always thought it… read more
I noticed that my Fibro flares have changed. i still have the pain, aches but also. Sinus,IBS and bladder issues. Anyone else?
No one understands in the nedical profession that this condition encompasses every aspect of our body and it can cause bladder, heart, colon and sinus issues. It is inflammation that never eases.
Hello friends,
I saw my Neuro surgeon today for my lower lumbar spine issues. He recommended a pain injection as my lower back pain is not giving a relief.
Has anyone had pain injection?
What are the good and cons of it?
Was or is it helpful?
Any advice is appreciated xx
Hi Ernestine
I see your question was from a year ago, so Big Question
Did you get the injections and did you get some relief? 🤞
I put off back surgery for a couple years or more by getting cortisone… read more
I was told this in 2020. Since then had problem with eye was told optic nerve inflammation. It comes & goes but I bit of pattern nearly every Jan/feb like major flare up. But seems to be getting worse every time I now suffering with muscle weakness and fatigue pain & aches in joints. List goes on I would did Covid trigger it? Tia
A subset of fibromyalgia patients have findings suggestive of chronic inflammatory demyelinating polyneuropathy and appear to respond to IVIg. Rheumatology (Oxford).
IVIg
Intravenous immunoglobulin… read more
Have been suffering with headaches for 3years. Have seen numerous neurologists and had many medications and tests with no answers. I am being treated for dystonia and tremors with botox injections.
Yes both my headaches can be really bad and start the moment I wake up - I get tumours if im am extremely stressed. I have no cure for either so if you find one let me know 🙂
