I have you name it, all the bad symptoms of fibromyalgia & I'm not able to hold a full time job. I have had this for 24 years now. I also have severe depression because I have lost my purpose of raising 2 daughters that are adults now. How do fibromyalgia people make it financially by themselves?
I had to give up my nursing career, which was off to a late start anyways, due to my deep dislike for school. I wish somebody would have told me long ago that college is so very different from high school. In high school, I was not very focused on education, but of course on boys....like most teenage girls. And, being 'old school', all I ever wanted was to grow up, get married and settle down. Well, somewhere, somehow along the way, that idea got messed up so many times, but I kept trying, and finally got the marriage and settling down part finally right. My sons are grown and have families of their own. I didn't go back to school til I was 43yrs, but was amazed at how easy it was! And even moreso at being an honor student with a 4.0gpa in pre nursing and carried a 3.8 throughout nursing and graduation. If I hadn't had waited so long, I would have went further, but did not want to be paying student loans during my retirement years. It was such a great feeling to be finally able to sit down, pay my utilities, and then go to the grocery store and wal mart and not have to worry about what I couldn't afford and would have to do without that paycheck. I was never 'rich' or well to do.....but just the ability to pay my bills when I was supposed to pay my bills while only working one job was such a blessing to me. Then, it seemed the more I worked, and the older I got, I was not able to go 30+ hours without sleep, and of course, my migraines would trigger faster and more frequent. And, finally, add insult to injury, if my head wasn't trying to fall off my shoulders, or my eyeballs explode from their sockets, then I was feeling as if somebody had snuck into my room and had a good ole iron skillet beating party on me. added brain fog and short term memory issues and medication adjustments that did not go well have finally landed me in what I've termed 'time out'. The very thought of going back to work almost breaks me out in a rash, because I know I can't do it 'correctly' and in a manner that would be fair to my co workers or my patients. I have applied for disability, but that is a long, long wait.....especially when you need to hear what they have decided. Either way, I can't go back to work, my endurance is so poor. I can't even fix tea without setting the timer on the stove, so I don't burn it up, because I've forgotten about it. So, it is by God's grace and mercy that we make do and get by. There are so many promises He has given us that tell us He will take care of us. I may not have everything I want to eat, but I've got food to eat, a roof over my head. A good husband who works hard for us, and goes to church, even when I don't, or can't. I am very, blessed to have had the lives that I've had. I say lives, because I feel like I've lived so many (in chapters) that have been so unique and different.
And I'm babbling again.....so sorry.....hope you all have a great day......He will make a way.....He is Way Maker!
I lost my teaching job 10 years ago because I could not function properly. Fortunately, my husband had a good job and was able to support us. i was able to take my pension 5 years ago and now I have my own home-based business which allows me to work around how I am feeling and I am following my passion to help people again.
I'm very fortunate to have my mom. I'm 21 and I have a great mom who believes me and doesn't push me too hard and understand when I cant do even the simplest tasks
I had to step away from a full-time job in ministry, and I was very fortunate to have
1. a senior pastor who allowed me to take 6 months for wellness leave (unpaid)
2 . a husband whose salary did not allow us to experience hardship.
I returned to my job part-time in December, and there are days (most) when I question whether I can continue in ministry or not. Even with a flexible schedule and smaller workload, some days are just brutal with fibro and the other diagnoses. Praying through each day. Not by my strength, but yours Lord.
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