Answer Summary
Members shared their frustrations around the question of why rheumatologists often refuse to treat fibromyalgia patients, with many describing... Read more
There are some rheumatologists who specialize in fibromyalgia. Just like there are some neurologists who will help with migraine. But, when doctors focus on a specialization they go from there. If their training has not included something like fibromyalgia then I believe it takes extra training afterwards... and of course interest in doing so.
Hi Sue, my experience has been they just don't know WHAT to do!
My rheumatologist had several things for me to try but nothing different than my PCP had already tried.
Someday... Hopefully they'll come up with something that works for us but I'm not holding my breath.
Love,
Deb 😘
My PCP referred me to a rheumatologist and the first words out of her mouth were I don't treat fibromyalgia and I don't prescribe pain medication. She eventually gave in and gave me half the dose of tramadol I was getting. I only get a 90 day supply and have to have my pee tested twice a year. Its ridiculous. My other rheumatologist was great and gave me what I needed but she retired.
Hi If I had not been referred to Rheumatologist I would not be diagnosed properly. 25 years of Misdiagnosis including Non Hodgkins Lymphoma, for Sarcardoisis. But She spent 6 months with rigorous Labs to make diagnosis.
Always, Always Advocate for Yourself!! They make mistakes they are Human, and talk about Fibro meds. Lyrica, Cymbalta, Savella.
I hope you get the help you need.
With Misdiagnosis even Christina Applegate is experiencing this, and she’s still in hospital. She has money and clout, doesn’t matter. For 5 years she was on MS meds for no reason. Plus, doctors came in her room “Congrats!! You don’t have MS”! Massive mind f!
It's a frustrating reality that many people with fibromyalgia face — feeling dismissed or undertreated by doctors, including rheumatologists. The truth is, fibromyalgia has historically been met with skepticism, even within the medical community.
Here are some reasons why this disconnect happens:
- Stigma and misunderstanding Show Full Answer