Answer Summary
Members shared mixed experiences when asked about the benefits of working with a rheumatologist for fibromyalgia, with many noting that while... Read more
I've been one of the lucky ones I guess, to have gone to a rheum. early, and was believed, validated and diagnosed with fibro. I've worked closely with him since 2001, and now we discuss the fact that soon neurologists will need to be updated often about fibro and its link to the brain and neurotransmitters and stuff. right now, I haven't had luck in that area.
My fibro has gotten progressively worse, and I am now looking into medicial cannibis (legal in Illinois).
I've had 3, one was a university educator. I thought she'd be the best help, up on the latest treatments. They never had ANY good advice. Just the same "here take this". I had ZERO luck with them, some still don't believe in fibro 🙄
My rheumatologist discharged me because there was nothing more they could do to help. They suggested counselling and support therapy.
@A MyFibroTeam Member, i agree, a neurologist makes the most sense to me based on what actually causes Fibro symptoms, I asked my Rheumatologist why Fibro patients are sent to them instead of neuro, he said it was because they still technically classify Fibro as a musculo skeletal disorder. I went to a neurologist a while back to help with my migraines, when i told him I had Fibro he laughed at me and Fibro wasn’t real. I should have walked out of his office right then and there, but instead i just told him that “hundreds of rheumatologists out there would disagree with you mate, along with almost 10% of the western population”. So doesn’t seem like many neurologists would care enough about it if he is any example!
My rheumatologist is not aware of many symptoms I have being related to fibro. Sometimes wonder if a neurologist would be better.