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A MyFibroTeam Member asked a question 💭
Greenville, NC

Does anyone get a rash or hives or headaches, feel sick nausea feel like I about to pass out want you go out in the sun. Because I do and the doctor told me to stay out of the sun

April 20, 2016
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Answer Summary

Members responded to the question about sun sensitivity with many sharing they experience similar symptoms, including rashes, hives,... Read more

Members responded to the question about sun sensitivity with many sharing they experience similar symptoms, including rashes, hives, headaches, nausea, and extreme fatigue when exposed to sunlight, with some noting their doctors suspected lupus or advised staying out of the sun. Several members described practical strategies like wearing SPF 50 sunscreen, limiting sun exposure to brief periods for vitamin D absorption, taking vitamin D supplements for deficiency (a recurring issue in the community), and checking medications for side effects that increase sun sensitivity. A common theme was the struggle of balancing the body's need for vitamin D with the physical toll of sun exposure, as well as the frustration of feeling drained or worthless after minimal time outdoors.

A MyFibroTeam Member

I stay out of the sun as much as possible, with me and fibro and other illnesses the heat really drains my body out to the point i cant move for the rest of the day. A while back when i was first diagnosed with fibromyalgia my doctor told me not to take real hot showers or baths, which i love to do, he told the heat really sets the muscles and nerves off to the point you start hurting real bad, and its true, so i have to lukewarm showers, but i really miss my hot hot showers.

June 7, 2016
A MyFibroTeam Member

Yes I deal with the headaches and skin rashes when I'm in the sun. I try avoiding long periods of being outside in the summer. I suffer from severe allergies as well. It is very draining to be out in the sun too. I have a vitamin D deficiency so I do try to get out to absorb the sun for that reason. My rheumatologist suggested that I use sunscreen until September.

June 20, 2016
A MyFibroTeam Member

I've always been sensitive to sunlight (chalked it up to being pale though). Now I wonder if I feel sick from sun because of fibro. Interesting! Doctors can be so unhelpful...

April 30, 2016
A MyFibroTeam Member

Yes I do..sunscreen wad recommended SPF50

August 10, 2016
A MyFibroTeam Member

I also have vitamin D deficiency, so I take vitamin D supplements, so I think it does have something to do wit Fibromyalgia

July 20, 2016

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