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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I've just been absent from this group for a couple of months from feeling low. I now realise that I could have asked any one of the lovely people on here for help advice or just a chat. Why do some people like myself run away and isolate from others when that's when we need somebody the most. I don't understand my actions!!!

August 21
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Answer Summary

Members warmly welcomed back someone who had been absent from the group while feeling low, and openly explored why people with fibromyalgia... Read more

Members warmly welcomed back someone who had been absent from the group while feeling low, and openly explored why people with fibromyalgia tend to isolate when struggling most. A recurring theme was pure exhaustion, with many sharing that brain fog, constant pain, and the effort of forming words or keeping up a conversation makes reaching out feel impossible rather than unwilling. Several members also noted feelings of shame, not wanting others to see them in pain, and a fear of being a burden, while reassuring one another that taking breaks is a valid coping skill and that the community is always here.

A MyFibroTeam Member

Me personally, I realized it’s exhausting. A phone call or a visit when I’m not doing well, the added stress of carrying on a conversation is exhausting.

August 21
MyFibroTeam

First of all, welcome back! πŸ’™ It's completely understandable to feel confused about why isolation happens, especially when support is right there. The truth is, this is incredibly common with fibromyalgia, and you are definitely not alone in this pattern. There are a few reasons why people tend to withdraw when feeling low:

Show Full Answer

First of all, welcome back! πŸ’™ It's completely understandable to feel confused about why isolation happens, especially when support is right there. The truth is, this is incredibly common with fibromyalgia, and you are definitely not alone in this pattern. There are a few reasons why people tend to withdraw when feeling low:

- Emotional exhaustion β€” When pain and low mood hit together, even reaching out can feel like too much effort
- Self-consciousness β€” Feeling like a burden or worrying about being judged can make it easier to disappear quietly
- Loss of identity β€” Fibromyalgia can make people feel like they're no longer the person others knew, making connection feel harder
- The "invisible illness" factor β€” Feeling misunderstood so often can make it seem pointless to reach out, even to those who truly get it The important thing is recognising the pattern, which has already happened! That self-awareness is genuinely powerful. Next time the low feelings creep in, even a small message to someone here can break that cycle before it takes hold.

You came back, and that took courage. 🌟

August 21
A MyFibroTeam Member

I absolutely hate video conversations. I remember watching star trek with dad and at the age of 8 I told dad that if that ever happened in real life I'd be really concerned for the world πŸ˜‚πŸ˜‚πŸ˜‚ Now they are working on A.I men and women for that special someone in your life. Fill our 9 million forms about what you want and desire in a partner and for a price they can make your own special bot that does everything says everything and is also a therapist masseuse knows every little thing you like and will be your perfect person.
What a crock of shit πŸ˜‚πŸ˜‚πŸ˜‚ I wonder if this will come out before they take Mars to pollute just like the earth. I mean it makes perfect sense, when you've screwed one planet up just go get another one to screw up. That's how far we have come.
The rich take over the world.
What happened to writing a letter. Giving someone something to actually look forward too.
I have a box of letters from friends and family that I love to re read. These are the memories I adore. I believe so much stress comes from social media and everything that goes with it. I had to put a stop to 6hr facetime sessions from my children who would carry me around the house basically complaining about everything they needed to do.
I think they'd get alot more done if not on facetime. It's exhausting πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚

August 25
A MyFibroTeam Member

Hi Laura, I’m glad to see you. Totally understand why you didn’t want to come on here. I’m sure you were very exhausted and overwhelmed ..sometimes just writing to someone is more than we can handle. Our nervous systems with fibro myalgia are just shot. There’s a lot of people that stop coming on here for long periods of time and then come back. We all understand, sweetheart.πŸ’ž

August 21
A MyFibroTeam Member

I think this is incredibly normal for people with chronic conditions mostly because one is mainly concerned with survival and trying to get through the pain. It makes it difficult to have the cognitive capacity to verbalize and relate to others even though one might realize others might be able to assist. From experience being in a stage of constant fog, I was uncomfortable with not being able to express myself clearly so I avoided situations that might require me to do so. The fact that you returned to the board says a lot about your resilience. I welcome you back, everyone here certainly understands.

August 21 (edited)

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