High Steele, I agree with Heather it's good advice. Sometimes it's just disappointing when you can't make it. But it's not your fault pacing yourself is the hardest thing about this disease. I'm trying to figure it out as I go along. Listening to your body is important. You Are not alone. Hugs and less pain. Have a good night sleep 🌙💚💙💜❤️🌙

Hi Steele,
I take each day as it comes. I make plans but my true friends and family who know everything going on, understand why I have to cancel at the last minute. This is not your fault.
It's definitely frustrating at times and it's a lonely illness.
I'm here for you. You didn't choose fibro, it chose you. 💜💜
Hugs Heather 💕

Hi @A MyFibroTeam Member! (apologies as I have been missing for several months....again)

I seem to be a champion at not being reliable due to my Fibro symptoms. From outright exhaustion to IBS problems to just running of out steam, or being in too much pain..... so many times have I had to cancel appointments, get togethers, fun stuff I actually WANT to do. I finally explained this to every one of my doctors and their office staff. If I have to call, literally, the moment before leaving for an appointment, I want them to know why, because the call can't be long. If I'm in a lot of pain, struggling with severe IBS, or totally fatigued, in any of those cases, my call won't be long but my apologies will be sincere and spoken! I have not asked them not to charge me, I assumed they would. But not one of them has. When I am capable of going to see the doctor or visit with friends, I do, no matter how much I might drag my heels. So I keep myself clean on the inside by doing my best to be honest first with myself, then with others.

And yes, sometimes it crushes me to miss friend or family get-togethers! But this is what Fibro does to us.

My most painful heart cry is I feel I can do so little for God's kingdom. I cannot even attend church as I am 98% housebound. The only thing I can get out for is a doctor appointment and maybe 1 or 2 get-togethers a year socially. So, I finally decided to load my purse with tracts and try to give those out WHEN I do make it out of the house. That helps. I can't preach, so I just hand out tracts with a smile. Often the phrase "Did you get your copy of this yet?" makes people want it if they didn't, and save me heckling them if they did.

That, and making a page on a social platform that is all Biblical Sermons that are solid and making it available and trying to keep posting regularly has been a joy. That's it. It's not much, but I have to focus on what the Lord has enabled me to DO -- not what He has kept me from doing. (My suspicion is that part of the reason for this in my life is that I would not learn humility without it. And my compassion for others who suffer would not be as deep.)

I hope this helps you, dear brother, @A MyFibroTeam Member.

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A MyFibro...

Can totally relate to that, I feel sad for my husband, he didn't marry who I am now, he accepts my health but sometimes, especially when I am having bad days I wish I could die and free myself from despair, him from losing out on life as he is my carer.
Morbid again in my reply, not in a good place at present. However, been here many times and I just hang on the ride, don't waste energy fighting it, just patiently wait till things become less intense and go back to adjusting to new me.
Seeing ANOTHER new Dr today as we are in a different country now, husband excited as he always thinks they will find something and make me who I used to be.
Had every conceivable test going and tried prescription to alternative therapies, shrinks, spent lots of money. Situation healthwise is slowly chipping away and I am deteriorating.
Prayers to sufferers and the loved ones who watch helplessly.

It is frustrating for sure to deal w this illness but i just keep pushing along. Pacing is a hard thing to do and learn but i always try to fit in day or two a wk where i can rest if need to. Thats only way i can deal.