Feeling misunderstood by family, friends and co-workers is a common experience among members of MyFibroTeam. Many people don’t understand fibromyalgia, and those living with the “invisible illness” don’t always have the words – or energy - to explain why they can’t get out of bed in the morning. When asked by the community how they describe the painful chronic condition, members shared creative - and humorous - responses. It’s like:
One popular resource shared by members is the “Spoon Theory,” a metaphor to explain “invisible chronic illnesses,” developed by a woman with lupus. One member said, “It helps family and friends understand what it ‘costs’ you to spend your energy on them.” Being part of a group that “gets it” can help those with fibro find the words to describe the experience - or not. “No matter how many analogies I use to describe this condition, the eyeballs still roll, the blank stares still stare. I’m so thankful for this group,” wrote one member.
On MyFibroTeam, the social network and online support group for those living with fibro, members talk about a range of personal experiences and struggles. Feeling misunderstood on what it's like to live with fibromyalgia is one of the top 10 topics most discussed.
Here are a few question-and-answer threads about feeling misunderstood:
Here are some conversations about feeling misunderstood:
Have another topic you'd like to discuss or explore? Go to MyFibroTeam today and start the conversation. You'll be surprised just how many others may share similar stories.
Feel free to ask a question here.