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A MyFibroTeam Member asked a question 💭
Cortland, NY

Nasty crap has me bedbound for years

March 29
 · 
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Answer Summary

Members responded to a question about living with fibromyalgia alongside other conditions, with many sharing that their diagnosis lists are... Read more

Members responded to a question about living with fibromyalgia alongside other conditions, with many sharing that their diagnosis lists are long and complex, often including CFS/ME, migraines, IBS, depression, anxiety, and more. Several members described spending much of their time bedbound, with fatigue being one of the hardest symptoms to manage. A recurring theme was the weight of managing multiple serious conditions at once, though one member offered hope by sharing that simplifying medications and focusing on mental health had made daily life more manageable and even happy.

A MyFibroTeam Member

My list is long. It does include fibro, CFS/ME, chronic headaches, migraine, Bipolar with extreme Bipolar depression, agoraphobia, anxiety, idiopathic hypersomnia and insomnia, chronic hyponatremia, neurogenic bladder, issues with malnutrition due to compromised gastric bypass, spinal stenosis and chronic inflammation of the small intestine. My previous psychiatrist used to throw medication at everything. I fired him and my new psychiatrist helped me cut down to 3 meds for my bipolar and agoraphobia. In addition, 3 years ago I was prescribed 7. 10-325 Hydrocodone a day which as a good patient I took them for 7 years. Well, I ended up with opioid slow and in ICU for 3 days on life support followed be 16 days in hospital and inpatient rehab. I haven't used pain medication since. Recently my neurologist prescribed a low dose muscle relaxer. I'm giving it a shot. If it doesn't help he's going to continue the appeal process for Tonmya. I do get Botox every 3 months for migraine and take several supplements to help keep the malnutrition at bay. It has been an interesting path over the past 15 years but now my mental and emotional health is pretty good which lets me work through all of my physical conditions daily. My life is challenging but happy. So, less medication has given me a better life. L,V

March 31
A MyFibroTeam Member

Oh my gosh. I feel there is too much to list.

April 17
A MyFibroTeam Member

Yes, lots of things all at once it seems

March 31
A MyFibroTeam Member

I have been diagnosed with chronic migraines, ibs, bipolar 2, generalized anxiety disorder, complex ptsd, arthritis, high cholesterol (I think the proper term is hypercholesterolemia? Not sure), orthostatic hypotension, and eating disorder-not otherwise specified.

I think out of everything the fatigue is the worst. I wouldn't be surprised if I had even more stuff going on!

March 29
MyFibroTeam

Do others with fibromyalgia also experience chronic fatigue syndrome (CFS/ME)?

Yes, many people with fibromyalgia also deal with chronic fatigue syndrome. A MyFibroTeam member shared that they were diagnosed with fibromyalgia and later unofficially with chronic fatigue syndrome. The overlap between these conditions is Show Full Answer

Do others with fibromyalgia also experience chronic fatigue syndrome (CFS/ME)?

Yes, many people with fibromyalgia also deal with chronic fatigue syndrome. A MyFibroTeam member shared that they were diagnosed with fibromyalgia and later unofficially with chronic fatigue syndrome. The overlap between these conditions is common, and you're definitely not alone in experiencing both.

Being bedbound for years is incredibly challenging, and it's understandable how frustrating and isolating this must feel. The combination of fibromyalgia and CFS can create severe limitations that others may not fully understand.

Some members have found it helpful to discuss with their doctors whether they have both conditions, as the symptoms can overlap significantly:

- Extreme fatigue that doesn't improve with rest
- Widespread pain
- Sleep problems
- Brain fog and concentration issues
- Orthostatic intolerance (feeling faint when standing)

Having both conditions recognized can sometimes help with treatment approaches and validation of your experience. Many members understand the struggle of being severely limited by these overlapping symptoms.

March 29

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