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A MyFibroTeam Member asked a question 💭
Batavia, IL

This ME term keeps coming up. I wish someone would write an article on it to share on this site.

September 17
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Answer Summary

Members explored the differences between ME/CFS and fibromyalgia, noting that while both involve chronic fatigue and widespread pain, ME/CFS... Read more

Members explored the differences between ME/CFS and fibromyalgia, noting that while both involve chronic fatigue and widespread pain, ME/CFS has a unique defining feature called post-exertional malaise (PEM), where symptoms worsen 24 to 48 hours after activity. Several members shared that they believe they have both conditions, with some tracing their ME/CFS onset to viral infections like Epstein-Barr or mononucleosis, and one member found improvement through central nervous system therapies without medication. A recurring theme was the frustration of overlapping symptoms, long waits for specialists, and the challenge of getting clear answers from doctors.

A MyFibroTeam Member

I say rubbish, I saw 2 specialists within a week. 1 diagnosed me with fibro the other M.E I just walked away shaking my head. They don't know and when they don't know they put a name to it to relax the patient. All it does is relax them. They don't know everything about the body. Yet they think they are supposed too. The human body is the most complex thing. Can you find a thought if you cut up a brain? Yet people have roughly 6000 thoughts a day yet all they can find is brain patterns. They will never understand the human body 100%

September 17
A MyFibroTeam Member

I think that is very hard to get a diagnosis, plus fibromyalgia can cause a lot of the same issues. I’m not officially been diagnosed with ME/CF either but I did go over my entire history with my doctor. He tried to treat me with antivirals but they did nothing. Talk to your doctor.

September 22
A MyFibroTeam Member

Jodi, I googled it and found great explanations. It seems like dizziness goes with it, feels like flu etc. I was always told that everyone with fibromyalgia has chronic fatigue to a certain degree ..some have it worse than others. Some are bedridden.

September 20 (edited)
A MyFibroTeam Member

I personally feel I have both but since severe chronic fatigue is part of fibro , I have been told then they just diagnose as fibro? (strange I know) should be diagnosed having both FM and CFS I think.
Does anyone on here or has anyone heard of anyone with fibro that doesn’t have chronic fatigue with it? I have always been curious?

September 17 (edited)
A MyFibroTeam Member

Jodi just my opinion...pem from fibromyalgia can happen anywhere from immediately after movement as mine did but now since I have been working on my cns it now appears up to 2 days after activity. I have been told my baseline has adjusted but I still get it. Fibromyalgia always changes. I understand and have felt what you are feeling. It's difficult. I wish you well.🥰👍

September 17

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