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A MyFibroTeam Member asked a question 💭
Bristol England

B12 levels does anyone know about B12 injections and anyone have them.
Someone I have spoken too his Dr has been looking into people with or has had long covid . And said that the immune system of affected won’t regulate B12 .
Would appreciate if anyone knows anything about it
TIA

September 18, 2024
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Answer Summary

Members shared their experiences with B12 levels and supplementation in relation to COVID-19 and fibromyalgia, with many taking daily B12... Read more

Members shared their experiences with B12 levels and supplementation in relation to COVID-19 and fibromyalgia, with many taking daily B12 supplements or receiving injections every few weeks to months. Several members discussed practical approaches to B12 management, including one person explaining that daily supplements prevent the dips in energy that can occur between injections, while another shared how a contact's doctor suggested the immune system may struggle to regulate B12 after long COVID and recommended frequent self-administered injections from a German supplier. A recurring theme was the broader exploration of supplements like CoQ10 (recommended at 300mg for fibromyalgia), ashwagandha, and CBD gummies, alongside concerns about medication interactions and the search for natural alternatives to long-term antidepressant use.

A MyFibroTeam Member

I take B12 mostly because I am a senior and also eat a vegan diet. I have had B-12 shots as well. Our health insurance requires us to have a check up every 6 months with bloodwork and our dr always checks are B12 level.

September 24, 2024
A MyFibroTeam Member

Hi sam, I've had covid a few times but not long covid, i don't think i was b12 deficient with it although I was never tested ..take care sam

September 18, 2024
A MyFibroTeam Member

I know all the B vitamins matter in lots of ways actually. That and Vit D.
Mainly across the board for many health issues.

So long haul covid is one of your many endless craptastic things to try and piece together?

September 18, 2024
A MyFibroTeam Member

I have a genetic mutation that keeps me from storing b12 so I've been on daily supplements from an early age. I got injections a couple of times before I was diagnosed, when my levels were extremely low. I will say my doc mentioned the down side to taking injections versus daily supplements is that toward the end of the cycle, right before your next injection, your levels will be lower. So with the daily supplements I don't get that decrease. Hope this helps!

September 18, 2024
A MyFibroTeam Member

In 1989 I probably had a nervous breakdown and I was given antidepressants. I suspect that I should have only been on them for 2 years at the most. We moved from fort st John in Northern British Columbia to Nanaimo on Vancouver Island, British Columbia (a requested transfer). Very serious objections from my 16 year old daughter, none from my 14 year old son, because his best friend was moving to the maritimes. My ex husband lived in Nanaimo and I was concerned that he would interfere with the kids. We also had 2 houses for sale and the realtor called me daily to complain about the tenants. My daughter was hospitalized shortly after the move with suspected Celiac disease. This kind of broke me and I cried all the time.

All of these issues were resolved within 2 years and I should have been taken off antidepressants. In 2020, 30 years later I was weaning off an antidepressant to change to yet another when I saw a naturopath about a rash on my arm. As we were talking she asked if I wouldi like to try something else instead of antidepressants and she made me a tincture of ashwagandha, lavender and I've forgotten what else. I was fine (the rash was caused by gluten intolerance). I still take lavender capsules in the morning and ashwagandha at night. I have stopped drinking alcohol every night and don't drink at all now, so will stop taking lavender for liver support when the bottle is done.

September 21, 2024

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Johannesburg, ZA

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