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A MyFibroTeam Member asked a question 💭
Manchester, UK

I wondered if anyone else got the chills where you shake with cold sometimes as part of the condition? I've had this a few times but my boss at work says this is nothing to do with fibromyalgia. Does anyone else get them? Thank you

February 12, 2019
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Answer Summary

Members overwhelmingly validated the experience of getting chills and feeling feverish as part of fibromyalgia, with many describing... Read more

Members overwhelmingly validated the experience of getting chills and feeling feverish as part of fibromyalgia, with many describing temperature regulation issues like feeling hot and cold at opposite times from others, sweating without fever, and experiencing flu-like symptoms during flares. Several members shared that these episodes often signal the start of a severe flare and require immediate rest to prevent weeks of worsening symptoms, with one member noting their doctor confirmed chills can be part of fibromyalgia for some people even when blood tests come back normal. A recurring theme was the frustration of feeling seriously ill while test results show nothing wrong, and the comfort of knowing others share these confusing and isolating symptoms.

A MyFibroTeam Member

Hi
Thanks to everyone who posted about getting the chills/rigors. The GP says it looks like these are part of fibromyalgia for me but they won't be for someone else. I couldn't believe my blood tests were normal- how can that be when you feel so ill?!!!
I've been off work a month now and am not improving. In fact I've not managed to get up today and the days nearly over.

March 13, 2019
A MyFibroTeam Member

Yes I get chills and feel like I’m burning 🥵 from the inside

February 12, 2019
A MyFibroTeam Member

These are the symptoms that I get when im starting a severe flare. Its exactly like I had the flu, but no cough, congestion or sore throat. And when this starts, I now know that I need to take time to recover, because if I push myself it will only worsen and last for weeks.

February 12, 2019
A MyFibroTeam Member

I went to my GP about the chills / rigors I keep having and she was not sure if they are related to my fibromyalgia. She sent me for a chest X-ray and I am to have blood tests next week. No quick answers are there! In the meantime she signed me off work for a week so I'm going to make the most of having a rest. I feel I could sleep for a week!

February 14, 2019
A MyFibroTeam Member

Sometimes when I fall asleep I get crazy sweats. Then feel chilly of course. not too serious all the time. I'm slightly past my menopause so I didn't get it that bad to begin with. If you're at the menopause age it's hard to distinguish. Hope this helps hugs best wishes

February 13, 2019

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