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Has Anyone Had Painful Scalp?

A MyFibroTeam Member asked a question 💭
Cuyahoga Falls, OH

For years I have had periods of time (few days to a week) of my scalp being very sensitive to touch. Hurts when you wash your hair or scratch your head. Will go away then come back aweek for two later. Just wondering!?

April 28, 2018
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Answer Summary

Members strongly validated the experience of painful, tender scalp as a common fibromyalgia symptom, with many describing pain that feels like... Read more

Members strongly validated the experience of painful, tender scalp as a common fibromyalgia symptom, with many describing pain that feels like bruising, burning, or hair being pulled out, often making everyday tasks like washing, brushing, or even resting on a pillow unbearable. Several members shared practical strategies that brought relief, including using sulfate-free shampoos, scalp massagers, cold compresses, DHS Zinc Shampoo, scalp oils, migraine medications, and avoiding tight hairstyles or accessories. A recurring theme was the importance of seeing a dermatologist to rule out conditions like occipital neuralgia, trigeminal neuralgia, psoriasis, or frontal fibrosing alopecia, and the comfort of finally understanding that this symptom is real and shared by many, not imagined or isolated.

A MyFibroTeam Member

I have a disorder called frontal fibrosis alopecia. My scalp burns, itches, and my hair falls out. It's brutal and the flare ups are extremely painful. I was diagnosed with 2 biopsies which I requested from the dermatologist to find an answer. It's an inflammatory disease that scars the dermal tissue in the scalp. It not curable, but I have some control with prescription shampoo, medication and minoxidil.

I also have adrenal insufficiency as well as Hashimoto's and hyperparathyroidism.

Don't know if this helps you. I would encourage people to go to a dermatologist and get a biopsy done. I don't know the connection to my fibromyalgia. But when I see so many people on here with scalp problems it makes me wonder.

God bless
Judy

April 20, 2019
A MyFibroTeam Member

The reason for scalp pain is myofacial pain. The layer of tissue known as facia gets inflamed , and causes extreme pain under the scalp. Myofacial pain syndrom goes with fibro.and I have yet to find a remedy

May 22, 2018
A MyFibroTeam Member

I’ve had the painful scalp for 3 years now. It’s very painful at times, burning, pain then gets itchy can’t scratch cause it will hurt more. Feels bruised and can’t lay comfortable on a pillow cause that hurts to. It’s one of my many hard symptoms to deal with. And I’ve lost a lot of hair. At first i thought my pain was from losing my hair but I understand now that it’s just another UGLY symptom of this Ugly illness that we are all trying to deal with. Hugs to all of you out there. Wishing better days for you all😍❤️❤️🙏

March 13, 2022
A MyFibroTeam Member

I can't pull my hair back at all. It gives me a headache. I have to wear loose fitting clothing also. I find anything tightly against my skin is extremely annoying.

May 26, 2018
A MyFibroTeam Member

I also get a very SEVERE stabbing pain on my head/scalp that comes on intermittently. I've been diagnosed with Trigeminal Neuralgia along with Fibromyalgia.

December 4, 2019

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