Hi everyone. I’m a soon to be 40 year old woman (yikes?!) and mother of twin girls aged 7. I was diagnosed more than three years ago but have been having a hard time accepting my diagnosis. My symptoms have really become pronounced over the past 18 months after a few months of extreme stress. I have Raynaud’s in my hands, feet and nose (diagnosed at 38 with late age onset), bilateral thoracic outlet compression, dry burning eyes, disturbed sleep, fatigue, muscle pain often stabbing and sharp… read more
It tooky almost a year to come to terms with everything. But theres still days when i feel like i MUST be dying. I have weakness in all four limbs but each day is different as far as severity goes. Before my diagnosis i quit moving and things got so bad i couldnt even walk thru the store to grocery shop, so my biggest piece of advice is dont stop moving no matter what. Its taken me months to get close to normal again after that. Muscle twitching also became so much worse when not moving. Like you I take many supplements, and get regular massage. I also take warm baths with Epsom salt a few times a week. Ive tried actual Fibromyalgia meds but they made me sick. I do take one Gabapentin each night but dont really know if it helps. If you would like to keep in touch via email or Facebook or something let me know. I know how hard it is to struggle with this.
Yes. Those sound like fibro. Unfortunately Stephenee is right. Nice way to describe it Stephanee. Everyone of us have similar symptoms but not exactly the same. We all seem to add more symptoms all the time. I have had fibro for 30 years and could not tell you every symptom that I have had over the years. I basically blow it off to being fibro when something new arises unless it feels like something severe. If you or anyone feels chest pain or anything that scares you, please go get it checked out. (We know our bodies more than any doctor ever will) My advice is to keep moving as much as possible and live your life with fibro. Don't let fibro rule your life. Welcome to the over 40 club. Lol. I am 51 and it seems like I just turned 40. Time flies. I hope this helps. Hugs
@A MyFibroTeam Member. I know how you feel. I have had fibro for 30 years and went on disability at 35. It is sad that we not only suffer with all of the symptoms of fibro but with people not believing how bad we suffer. I went 3 and a half years before being diagnosed and everyone including myself thought I was a hypochondriac. Now everyone that I care about finally understands what I deal with daily. I take a nap daily at 2pm so I have to make plans around it. I have found that if I stick to a schedule, I have less flares. You need to do whatever you can to live your life and keep your fibro under control. You can live with fibro but don't let fibro rule your life. I hope you get your anxiety under control. I know I used to get so bad, that I left a full cart at Wal-Mart because I could not stand in line with all the people to pay. Mine has been pretty much gone for years. I think if you get a little understanding and compassion from your loved ones, the anxiety will subside. Hang in there. I will add you to my team to keep track of you easier. Let me know if I can help you or if you just need to vent. Hugs. Ps. I don't really care about the fibro blood test because I know I have it but just curious what it would say. Lol
I was about to ask the same my fiance is in indiana and they tested his blood and told him all connective tissue diseases have a blood test
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