I thought I was going mad when I started developing hot patches on my body. It usually happens to me when I've been overdoing it and brought on a fibro flare. Painkillers, plenty of rest and some tlc help me. It must be awful having a migraine on top of that. Take care

For years I’ve had migraines that are part of fibromyalgia and didn’t know it as I don’t have the classic symptoms. Last year I went to a Neurologist as I had been getting pain down the right side of my face. It also affects one of my front teeth. We tried imigran and tiopiramate and didn’t work so now I have botox every 3 months and it works well. It’s called trigenimal neuralgia. I’ve noticed it on my left side now and I’m due for more botox in 3 weeks. My fibro affects me in so many ways. Touch I can’t have some materials against my skin, things like electric shocks, pain everywhere, neuropathy in my feet, fingers, wrists etc. I was on 300mg lyrica,100mg & 60mg slow release MS Contin, 60mg duloxetine, panadol, 5mg Valium. I had terrible side effects, brain fog, crying most of the time, IBS, no appetite. One day 2 years ago I woke up sobbing as I couldn’t breathe properly. I had all these terrible pains, IBS. That’s when I decided without consulting my Dr or Specialists to withdraw off all the meds. It was very hard and very painful took me about 6-8 weeks I was completely controlled by all those meds. I started taking panadol and forcing myself to get out and do something. Pain needs to be noticed and the more notice you give the more you will hurt. I’m not saying it’s not there but if you stop talking about it your mind controls it. It’s like diversion therapy. How many times have you asked someone who’s sick how they are and gotten a long list of the latest pains etc. why can’t they just say I’m great! You know why because pain hates that it’s not being recognised. When something hurts just let it be a simple thing like acknowledging it then not thinking about it can really work with practise. By the way there are clinical trials in Melbourne for people with fibromyalgia if anyone’s interested. All round the world they have clinical trials for all different illnesses some you even get paid. Just google clinical trials wherever you live.

I also have what I call "severe sunburn" burning at the back of
my neck, shoulders down into my arms and the front of my thighs. Hubby says I also feel warm. I feel better outdoors (in freezing Wisconsin) and prefer a window cracked although hubby closes it. I have noticed that if I over do it one day, the next day I burn. I try to NOT over do it on a good day. The burning sensation isn't as severe.

Im the same, Window is always open

Hi. Im newly diagnosed. Many questions. I sleep with the window open at night (in canada) in the winter. My boyfriend thinks im nuts. Is this overwhelming hot feeling part of my fibro?