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How Would You Describe You Fatigue To A Non-fibro Sufferer?

How Would You Describe You Fatigue To A Non-fibro Sufferer?

I suffer with fatigue more than pain, or maybe I manage/cope with the pain better than I cope with the fatigue.

I have well-meaning friends who say things like “how’re you sleeping” or “have you tried lavender?”... etc and I get so frustrated that people don’t understand, it’s irrelivant how much sleep I’ve had, it does not refresh me and I’m still fatigued, day in, day out, no matter what I do or don’t do.

One description I’ve come up with is “it’s so… read more

A MyFibroTeam Member said:

The Fatigue for me is the worse..I wonder if others like me have had a very stressful few years trying to get my life on track. It's very dibilitating and it's like your life is on hold...

I've only been married 10 months and I've been ill for all of them, my new life is blited by chronic fatigue and the depression it causes.

I can't believe I once lived in Spain, ran a business and worked 7 days a week, had 4 pugs,lots of friends and always on the go. Now I can't work got no income as I was not believed by people checking my claim for fibromialgia and refused any payment.

I am now on the candida diet, it's hard, you would have to look up candida diet to appreciate the elimination of all sugars, yeast ect

My head is clearer, hence I'm on here typing, my energy has improved but still no where near normal. It's early days as I need to detox my body for a good 8 weeks..

FiBE or FUNGAS is my train of thought right now and I am giving 1000% to this diet I'm 3 weeks in, my IBS is 97% improved, brain fog 75% improved.
I take a probioric 3 times a day and tomorrow start also taking Tumeric supliment.

It's the fatigue I mainly want to see improve, it's better than 3 weeks ago but legs still heavy when walk.

The first 2 weeks were hurt endows, your body goes into detox and it's fibromialgia fatigue x10 week 3 thank god it lifted and I wasn't in bed most of time.

If you have a diet high in sugar, yeast, alcohol this can also cause chronic fatigue.

If this helps any of you that would be fantastic let alone interesting to see if any of you have improved symptoms.

I'm just trying so hard to get my life back. This is the hardest and most miserable diet if you love food but the benefits could out way what has to be given up its worth a try...

From someone who truly understands what you all are going through and sends hugs and best wishes

Carol :)

posted over 1 year ago
A MyFibroTeam Member said:

I received one of my health newsletters, and in it, there was news that findings of Fibro are actually an immune system deficiency...there is a blood test now available I will post more as I learn more... The researchers say that this finding is a truly good thing in that the immune system can be treated with drugs. Nothing like is used now, but a drug that was used for Tuberculosis. Finding by experiments w.pts that this drug increases the immune system to better function. It does have a genetic marker that will show in the blood test... Will keep you all posted as I hear more.

posted over 1 year ago
A MyFibroTeam Member said:

I like to use the battery analogy. It's like putting your phone on charge at night and when you get up in the morning it's only reached 20% but you've still got to get through the day and try to do as many of things you normally would on very limited battery power.
I find people can relate to this so I hope it helps some of you too xx

posted over 1 year ago
A MyFibroTeam Member said:

It's like wearing a lead bodysuit.

posted about 1 year ago
A MyFibroTeam Member said:

It feels like someone dropped a heavy wet blanket on you, you can't support it so you can only give in and sleep it off. There is no other way. You cannot make yourself feel spry. Pretending is pointless and not even possible.Everything feels heavy EVERYTHING. Usually when you are this tired every ache and pain in your body is screaming.Every spot you ever injured on your body is crying out for rest. Your brain hurts when you try to concentrate. Your mind wanders when someone is speaking to you and they think you are being rude but in all honesty you just cannot stay on track. trying to task is difficult enough, multitasking is a no go.Trying to care only for yourself is more than you can handle. How can you attempt to help anyone else.Some days you feel like you are completely alone in a fog and just muddle through an entire day and do nothing but exist and feel you did not even do that well enough. DO NOT APOLOGISE. We are not this way out of choice.

posted almost 2 years ago
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