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How Would You Describe You Fatigue To A Non-fibro Sufferer?

How Would You Describe You Fatigue To A Non-fibro Sufferer?

I suffer with fatigue more than pain, or maybe I manage/cope with the pain better than I cope with the fatigue.

I have well-meaning friends who say things like “how’re you sleeping” or “have you tried lavender?”... etc and I get so frustrated that people don’t understand, it’s irrelivant how much sleep I’ve had, it does not refresh me and I’m still fatigued, day in, day out, no matter what I do or don’t do.

One description I’ve come up with is “it’s so tiring to move and my body feels so… read more

almost 5 years ago
Last of 211 replies sign up to view previous answers
A MyFibroTeam Member

The Fatigue for me is the worse..I wonder if others like me have had a very stressful few years trying to get my life on track. It's very dibilitating and it's like your life is on hold...

I've only been married 10 months and I've been ill for all of them, my new life is blited by chronic fatigue and the depression it causes.

I can't believe I once lived in Spain, ran a business and worked 7 days a week, had 4 pugs,lots of friends and always on the go. Now I can't work got no income as I was not believed by people checking my claim for fibromialgia and refused any payment.

I am now on the candida diet, it's hard, you would have to look up candida diet to appreciate the elimination of all sugars, yeast ect

My head is clearer, hence I'm on here typing, my energy has improved but still no where near normal. It's early days as I need to detox my body for a good 8 weeks..

FiBE or FUNGAS is my train of thought right now and I am giving 1000% to this diet I'm 3 weeks in, my IBS is 97% improved, brain fog 75% improved.
I take a probioric 3 times a day and tomorrow start also taking Tumeric supliment.

It's the fatigue I mainly want to see improve, it's better than 3 weeks ago but legs still heavy when walk.

The first 2 weeks were hurt endows, your body goes into detox and it's fibromialgia fatigue x10 week 3 thank god it lifted and I wasn't in bed most of time.

If you have a diet high in sugar, yeast, alcohol this can also cause chronic fatigue.

If this helps any of you that would be fantastic let alone interesting to see if any of you have improved symptoms.

I'm just trying so hard to get my life back. This is the hardest and most miserable diet if you love food but the benefits could out way what has to be given up its worth a try...

From someone who truly understands what you all are going through and sends hugs and best wishes

Carol :)

over 3 years ago
A MyFibroTeam Member

I received one of my health newsletters, and in it, there was news that findings of Fibro are actually an immune system deficiency...there is a blood test now available I will post more as I learn more... The researchers say that this finding is a truly good thing in that the immune system can be treated with drugs. Nothing like is used now, but a drug that was used for Tuberculosis. Finding by experiments w.pts that this drug increases the immune system to better function. It does have a genetic marker that will show in the blood test... Will keep you all posted as I hear more.

about 3 years ago
A MyFibroTeam Member

I like to use the battery analogy. It's like putting your phone on charge at night and when you get up in the morning it's only reached 20% but you've still got to get through the day and try to do as many of things you normally would on very limited battery power.
I find people can relate to this so I hope it helps some of you too xx

over 3 years ago
A MyFibroTeam Member

It seems not matter how much sleep and/or rest, I am wiped out. Occasionally, I will have a super charged day and get alot done but then I pay for it. My life would be so much better if I felt like I was really contributing to my family. I am so sick of my 10 year son seeing me move from a nap on the couch to bed for the night. My husband is very understanding but I feel like a SLUG in pain 24/7/365.

about 4 years ago
A MyFibroTeam Member

It's like wearing a lead bodysuit.

about 3 years ago

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