Does The Brain Fog Ever Improve? | MyFibroTeam

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Does The Brain Fog Ever Improve?

A MyFibroTeam Member

I have always been great at keeping up with appointments. Lately i have to write everything down in a planner. Now i am writting them on the wrong days and/or months or just not at all. I can not get my head together and it is very disheartening to me. I cant seem to remember much or it is all jumbled up in my head.

posted October 12, 2017
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140 replies
A MyFibroTeam Member

I feel all of your pain and I know it’s not fun. I have only started getting brain fog in the last year just forgetting a word here and there or forgetting what I did with something. The last few weeks have been really bad for me though. Forgot where I was going and I went to the store once and then wondered what I was doing there. Went to the station yesterday morning to get a few things for work and gas. The kid rang it up and said all checked in and I said thanks bye. He looks at me and say you haven’t paid yet. Oh geez I said then go to pay and I’m just staring at the card reader and I was like what am I doing again. Yep should have went back home to bed at that point. The worst part is I work as a DSP in a day program for aging individuals who have disabilities and are showing early signs of dementia and Alzheimer’s or who are already in the stages. So if any of my co-workers say any thing I just say well I’m right where I need to be.

posted August 1
A MyFibroTeam Member

Yes typical fm symptoms. I had lot ofMy ex used 2 call me xanaxhead!
Duh no I have a problem with my central nervous system. No more stupid remarks from him

posted June 1
A MyFibroTeam Member

I too am losing my memory. I can go from one area of my house to another and forget what I went there for. Also forget names and talk rubbish because I forget what I was going to say muddled up words etc. So I understand how you're feeling 😒

posted June 1
A MyFibroTeam Member

I feel all of you, it really could be so hard and depressing and LONELY... You be strong and try to fight Fibro and everything else and then you feel that you have to let them know how bad you hurt and how hard is to move, because they seem to think you are ok have the energy and strength to do things.

posted May 29
A MyFibroTeam Member

Hello everyone...I had a Dr. G.W for many years I have had fibromyalgia and Depression for years. When I became homeless it seems to me that my pain and brain fog has gotten worse. It's very hard for me and sometimes I have the wrong thoughts in my mind. I'm just tired.

posted February 15
A MyFibroTeam Member

For me this journey has been frustrating because it’s full of losses. I am grieving the loss of my life-former, present & future. I had goals I thought I’d have time to achieve and places I wanted to see, but due to the way Fibro affects my body I’ve had to put those goals to rest and change my ways. Change is difficult bc I have certain things I have grown accustomed to and have provided me with a sense of structure and security I need to function in this world.
There are a few positive changes which have occurred.
1) I am learning to practice humility. participating on this site is a way of practicing humility bc share our stories with each other. I humble myself when I ask for help from doctors, family and especially asking for intervention from a higher power!
2) I am practicing the virtue of gratitude. I am thankful to the people who aid in my care- doctors (former too!For all the incorrect diagnoses and medications bc without them I would not be as wise as I am now). I am thankful for my spouse, children, neighbors who share the the bounty in their gardens, those who cut my lawn & shovel snow, etc.
3) I can be a better advocate/educator for fibromyalgia to those who are not well- informed.
4) I have become more mindful for or show more compassion to ppl who struggle with silent disorders and diseases.

“Do what you can, with what you have, where you are.” ~Theodore Roosevelt

posted February 12
A MyFibroTeam Member

I’m very forgetful too! It’s maddening because I was a teacher. Just glad to hear I’m not the only one!

posted February 10
A MyFibroTeam Member

Gaylestorm,
I care! I feel sad reading your post bc I have been there too. Humans are meant to have companionship or be in communion with others. I agree it is difficult for friends to comprehend the magnitude of pain suffered unless they feel it too. And I would not want to wish it on anyone. I find it easier to ask talk about the pain and fog I experience in a way which they could really relate. Instead of saying “ it feels like a ton of bricks dropped on me” bc let’s face it how likely is that! Instead you could relate your symptoms to a situation more likely to occur like pain experienced after being in a car crash or falling off a ladder and the frustration of failing an English test bc you could remember the meaning of the words or forgot all the lines for your part in a play. Then say, “ this how I feel every day”. The pain and forgetful occur almost everyday in my life.
OR you might just say “it is difficult for me to get out much anymore, but I miss visiting w/ you. Please stop over & wear something comfy…I know I will be!”

Perhaps if you cannot go out with friends you could invite them to visit you ( to watch a movie, have a cup of tea, chat, put together a puzzle, play a board game, etc) . Or talk by phone.

You mentioned you are Christian (me too!)…have you ever gone to a healing service or healing mass? There are some Christian who have God-given gifts of healing. Ask your pastor if s/he can or knows of any people who can pray over you or lay hands for healing (and BTW- if it is truly from the Lord, the only cost will be your time!) A person could come to you! You could ask if there are people in the church who could visit you at home.

posted February 5
A MyFibroTeam Member

I feel 4 the RN. I was RN 11 yrs b 4 I ended up c back surgery. Pain never went away. Divorced twice. Husband remarried. I feel so defeated. First husband was bi polar. Second couldn't handle it anymore. I journal and want to send it somwhere bc q where I read not enuf studies. Well I am a lab rat and can say nothing 🤪 is helping me now cuz shrink won't give me enuf klonipin. I swear he must want me 2 end up in psych hospital. Ended up there when i went to ER 4 pain. I'm 65 and pain pain all time I'm considering ending it. I am a Christian and that makes it hard cuz I don't want to commit but we r 10x more likely to commit than those c chronic pain. . So they're dropping dead and no one cares. Sorry but the pain and stress of being alone is too much. 6 yrs alone. No help. Hard 2 keep friends when u cancel all the time. Not able to sit for salon in yrs. Take care. Q one is different. That's my story. I could go on and on. How many people have to take their own lives?

posted January 15
A MyFibroTeam Member

I have brain fog too, mobility and pain plus long list of other stuff.
I've had the brain fog over 30 years.

posted May 5, 2022

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