I have always been great at keeping up with appointments. Lately i have to write everything down in a planner. Now i am writting them on the wrong days and/or months or just not at all. I can not get my head together and it is very disheartening to me. I cant seem to remember much or it is all jumbled up in my head.
Mine seems to come and go. It has been better since I started eating more fruits and vegetables and doing my exercises. Stress makes it worse and the weather seems to bother me. So my answer is yes sometimes it does get better but I can always expect it to get worse with a flare.
Yes I definitely suffer with this all the time. It’s not just loss of memory, but it’s a strange sensory feeling as well eg: when I walk around I kind of feel groggy like I haven’t slept for 24-48 hours.
I also find it is much worse if I’m ever able to get out in public eg: grocery store, shopping mall etc - I think all the moving people and things in my vision spaces me out and makes me feel so much more foggy - almost disorientated.
I’m 43yo btw, and have no family history of dementia or other things that would explain the fog & memory loss, so with my young-ish age it would definitely seem Fibro/CFS related.
In part I suspect that the fog is related to two things in particular:
1. Constant lack of proper REM sleep.
2. Whilst I have never had any inflammation show in my blood work, I’m (like everyone) in constant pain with extremely tight muscles & joints. Therefor I believe the tightness through the thorasic and cervical spinal areas contributes. I think it must somehow put inadvertent pressure on nerves that cause this feeling. I know in the past prior to Fibro, I’d sometimes suffer something like this fog when I’d put my neck and/or back out. Combine this and the lack of sleep and I think it’s got to in part a significant contributing factor.
ps: I’m not sure taking sleeping pills really qualifies for real deep REM & regenerative sleep if people are thinking well I’ll just pop one of those to help.
Good luck all!! I truly hope we find some things to help. :-)
Don't be too hard on yourself. I think this disease just throws things at us to see how flexible and determined we are to find a way around it. I use a daily appointment/calendar book to record all my appointments and to make comments about each day. It helps a lot, plus it relieves your mind of that worry that you won't remember! Try it. I keep it in my purse so I can use it whenever I need to. I don't get as angry as I used to, and I am working on appreciating the things I can do. Good luck with this terrible disease. You have lots of friends here that will help you along the way.
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