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Just wondering if I'm alone in this.
I keep reading and hearing that fatigue is such a large part of FM yet it's the one thing I for the most part lack. I can be tired yes but it's not every day it doesnt interfear with life in general.
For me it's the 24/7 pain that interfears with life alays at a level 5 save when lucky to hit a 4. I know I don't get a solid nights skeep and always wake up tired. But I not exosted that I could stay in bed (even when exosted I can't stay in bed that for me… read more
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Members related to the original poster's experience of constant pain without debilitating fatigue in fibromyalgia, with many sharing that... Read more
My fatigue is associated with a flair up. I get exhausted from fighting pain. Otherwise, im ok. I do suffer from depression, that can exacerbate my fatigue
I do things in spurts. I find laying in bed is too painful as well. I don't have the fatigue I once had with the drugs I was given. I'm no longer on cancer drugs such as Oxycontin and Fentnyl patches. I move a lot and make a lot of notes and do what I can, when I can. I do not take naps because I would never sleep at night. I pace myself. I've had this for a very long time. I'm still asking questions of this group and wonder what to do to improve my pain. Cryomax ice packs that were given as a gift are a huge help. So are microwave heating items and seeing my pain specialist every few months help too.
I too am tired all the time but not exhausted to the point of staying in bed. I find being in bed really painful so have to get up whether I want to or not as lying in bed is like being on fire. Some days I struggle to do much but just have to really due to having a young family who need looking after. When I discussed this aspect with my GP he just said everyone experiences things differently so I guess I have to look on the bright side and think at least I am functioning to a certain extent. I am nowhere near what I used to be like and I guess when I worry about do I fit this diagnosis or am I really ill I just have to remind myself of all the things that have changed for me in the last 2 years.
Wow that's great I haven't met anyone yet who doesn't have the chronic fatigue that's really good. if only we all was in the same vote that would be even better not feeling exhausted would be lovely. I wouldn't wish it on anyone and suffering with pain is just agony my covers on my bed hurt me so wearing splints to bed to take pressure off me I sleep on the bed not in it has been now 6 yrs so finding the correct blankets to put over me is hard. keeping me warm at nights especially winter oh boy not nice our bodies can be such a pain in life.
I'm so sorry. Sending good thoughts. Kim
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