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A MyFibroTeam Member asked a question 💭
Richmond, VA
December 19, 2016
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Answer Summary

Members shared their struggles with temperature regulation in fibromyalgia, describing intense sweating, sudden shifts between hot and cold,... Read more

Members shared their struggles with temperature regulation in fibromyalgia, describing intense sweating, sudden shifts between hot and cold, difficulty cooling down after being outside, and soaking-wet hair and clothes that make daily activities challenging. Several members explained that the hypothalamus, which controls body temperature, doesn't function properly in fibromyalgia, with some mentioning that medications like Pregabalin, thyroid issues, blood pressure problems, menopause, and Raynaud's Disease can also contribute to these symptoms. A recurring theme was the comfort of knowing they're not alone in this frustrating experience, along with practical coping strategies like using children's cold packs when out, applying cool facecloths to the face, staying hydrated, and getting thyroid and blood pressure levels checked to rule out other causes.

A MyFibroTeam Member

The inability to regulate body temperature in Fibromyalgia is something that's been studied and found it to be a common symptom. https://www.verywell.com/temperature-sensitivit... - it was found to be because of the auto nervous system. As far as I know they're continuing studies in this. I have the same problem and I also have Raynaud's Disease which is a pain in winter.

December 19, 2016
A MyFibroTeam Member

Hi there, I am presuming, correct me if I'm wrong, that you are referring to the low grade fever sensation, that suddenly turns to freezing cold to the bones, that can in turn change into sweating like a pig in heat?? None of us, or most of us, have exactly the same trouble. They hypothalamus, the part of the brain that regulates our body temperature, seems to have flicked its crazy switch for us with fibromyalgia. My daughter lost hers due to her brain atrophy, and therefore could not sweat, We had to make sure that she was always regulated by what we could do for her, cool fans, or an extra blanket pending on the circumstances. We lucky fibro peeps, just have to deal with each switch over as best we can. But have comfort in the knowledge that you are not alone with this particular problem. Gentle hugs xx

December 19, 2016
A MyFibroTeam Member

Because the Grinch came in and snapped your internal thermometer off
(-:☃️

December 19, 2016
A MyFibroTeam Member

Get your thyroid checked!

December 20, 2016
A MyFibroTeam Member

I call it "my normal temp" 97.2 because it is usually around that, but I have times (and Im usually sick at these times) when it gets up to 100.2 or so, and people say that isnt a fever. I try to explain the chills, aching, feelin like Ive been hit back a Mac truck, but to no avail.

December 19, 2016

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