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A MyFibroTeam Member asked a question 💭
Palm Bay, FL

Mornings are the worst for me. Some days I wake up in so much pain I cant bear it. Some days are just ok.
Sleeping patterns with me are crazy. Just need good sleep!!

November 26, 2016
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Answer Summary

Members discussing their experiences with Fibromyalgia and sleep shared widespread struggles with erratic sleep patterns, often staying awake... Read more

Members discussing their experiences with Fibromyalgia and sleep shared widespread struggles with erratic sleep patterns, often staying awake until the early morning hours and experiencing frequent waking due to pain, with many describing mornings as particularly difficult and sleep deprivation making it impossible to plan commitments or function consistently. Several members found relief through treatment for sleep apnea with CPAP or BiPAP machines, restless leg syndrome medication, and sleep aids like Trazodone, melatonin, or muscle relaxers, though many emphasized the challenge of finding the right medication balance to avoid next-day grogginess while still achieving restful sleep. A recurring theme was the importance of listening to your body and sleeping when possible without guilt, with members encouraging each other to pursue sleep studies, advocate for proper treatment, and find comfort in knowing they are not alone in this exhausting aspect of living with chronic pain.

A MyFibroTeam Member

Does any one feel better that other people have some of the same problems ! and did you thank you were the only person that was suffering with your symptoms ? but you were relieved to find out that what you felt others felt also , and that it was not in your head ! i know i did ! well love PEACE JOY HAPPINESS & PAIN FREE DAYS AHEAD OF YOU! love and Prayers i send to you ,always michele

November 26, 2016
A MyFibroTeam Member

Hi all, I was just watching NBC news and they talked about this program that was helping folks with insomnia and had a 70% success rate. I haven't even checked the site yet (just saw it on the news), but have any of you ever heard of the program or app called "Shuti" ? I'm going to check into it.

December 5, 2016
A MyFibroTeam Member

I have a hard time falling asleep before 1 or 2 am. I am on the opposite schedule as everyone else. I am so tired during the day. My boyfriend woke me up one night to ask if I was OK and I asked why? He said I was tossing and turning and moaning in my sleep so he thought I was hurting a lot. I didn't feel in pain when I was awake but, did take a pain pill. He said I did settle down a little when I went back to sleep. I rarely dream so I know I am not getting into that deep sleep like I should. I take Lunesta to go to sleep and I still don't dream, I wake up quite often to reposition myself as my hips heels will wake me up hurting. I can't remember when I went to sleep and woke to feel refreshed, maybe 20 years ago.

December 5, 2016
A MyFibroTeam Member

Have had a sleep disorder ever since I developed Fibro and it has caused a completely erratic sleeping pattern. I never fall asleep until 5 or 6 in the morning, and then never know what time I am going to wake up, but the sleepless nights certainly impact my ability to function during the day and make it impossible for me to make any commitments, because I never know what my level of exhaustion or pain is going to be on any given day or at any given time. It has been this way for ten years.

November 27, 2016
A MyFibroTeam Member

I usually sleep between 3-5 hours when I'm in a lot of pain I've been known not to sleep any for 20-24 hours despite sleeping pills, muscle relaxers Klonopin my former pcp was a hateful witch that was talking all of her patients off of narcotic pain meds so I have been suffering horribly. I had been on hydrocodone for over 20 years I only took it when I needed to not on a regular schedule. I had a heart attack about 3 months ago it was a nontypical heart attack so I have different symptoms my heart rate fluctuates from 30 -150 beats per minute I'm getting a 3 year loop heart monitor implanted in my chest today the moral of this story even if I'm in lots of pain I get tired very easily at times and I sleep during the day.

November 30, 2016

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