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A MyFibroTeam Member asked a question 💭
Stockport, UK

All weekend I've had a freezing cold nose to touch. The weather here on Saturday was really warm, yet my nose was so cold it hurt, same yesterday. Today it isn't that warm but not cold enough for my nose to be this cold. It feels that cold as if it is turning blue. Every time I woke in the night the same.

Anyone else have this?

September 19, 2016
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Answer Summary

Members responded to someone experiencing an uncomfortably cold nose despite warm weather, with many sharing that they also experience cold... Read more

Members responded to someone experiencing an uncomfortably cold nose despite warm weather, with many sharing that they also experience cold extremities alongside feeling overheated elsewhere, a confusing pattern they attributed to fibromyalgia or poor circulation. Several members suggested it could be Raynaud's syndrome, which commonly occurs with fibromyalgia and can affect isolated body parts like the nose in any weather, while others recommended practical solutions like neck warmers, gloves, and discussing thyroid testing or medication side effects with a doctor. The original poster later updated the community to share that stopping the medication nortriptyline completely resolved the issue, offering helpful insight for others experiencing similar symptoms.

A MyFibroTeam Member

I will post the answer I get on Friday when I see my GP, I see a nurse tomorrow and going to mention it as a google search says under active thyroid and blood test is needed, so will see if she can do it tomorrow x

September 20, 2016
A MyFibroTeam Member

Yes my nose gets cold along with freezing cold hands and feet. Have Reynaurds in hands but just put warm glovea on when mi need them . I'm always a cold person so I layer up.Only time I'm warm is when I'm having hot sweats at night due to side effect of meds.

September 27, 2016
A MyFibroTeam Member

Thanks I'll have a look at those when on my laptop. I see my ent consultant in a couple of weeks and have made a note to ask him if not back to gp x

September 24, 2016
A MyFibroTeam Member

Medical Definiation issue is Autonomic and/or neuroendocrine manifestations: These manifestations include cardiac arrhythmias, neurally mediated hypotension, vertigo, vasomotor instability, sicca
syndrome, temperature instability, heat/cold intolerance, respiratory disturbances, intestinal
and bladder motility disturbances with or without irritable bowel or bladder dysfunction,
dysmenorrhea, loss of adaptability and tolerance for stress, emotional flattening,
lability, and/or reactive depression. http://www.mefmaction.com/index.php?option=com_...

OR could be Raynards:
https://www.verywell.com/raynauds-syndrome-chro...

https://www.verywell.com/raynauds-syndrome-chro...

I found that once I started using some Cymotel (Thyroid support) is has been better of course Winter is Coming Lol

One more article that you might be interested in
http://www.fibrodaze.com/temperature-sensitivity/

Good luck with your doctor:)

September 24, 2016
A MyFibroTeam Member

Mentioned it to nurse she said could be medication and to talk to a doctor, so will have to wait til Friday now x

September 21, 2016

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