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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
California, CA

My pain has gotten better with the warm weather. I still get a flare here and there but does not last for months. But, when I lay down or sit to rest I still have that tingling, electric feeling on my arms and legs. Does anybody know what this is?

July 27, 2016
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Answer Summary

Members responded to someone asking about tingling, electric sensations in their arms and legs when resting, with many identifying the... Read more

Members responded to someone asking about tingling, electric sensations in their arms and legs when resting, with many identifying the symptoms as nerve-related conditions like peripheral neuropathy, restless leg syndrome, or nerve damage from spinal issues. Several members shared medications that have helped them manage these sensations, including Gabapentin (Neurontin), Lyrica, Cymbalta, Elavil, pramipexole, and Xanax, while others emphasized practical strategies like using cushioned seating, elevating legs, adjusting arm positions, and getting up to move when symptoms strike. A recurring theme was the frustrating nature of these nerve sensations, often described as electrical impulses, bee stings, or an unbearable need to move, with members offering both medical insight and heartfelt solidarity for this deeply uncomfortable and sleep-disrupting experience.

A MyFibroTeam Member

You could check with your doctor about peripheral neuropathy my brother has this and says he gets tingling in his legs and numbness in his feet. Fibro is neuromuscular and neuropathy is neuronal. Lyrica helps with both neuropathy and fibromyalgia. Great question.

July 28, 2016
A MyFibroTeam Member

When I get it, I take the Lyrica for it if I have it. It drives me crazy and I can't sleep. If I'm out of my Lyrica, I'm screwed, then I know that it's going to be an all-nighter even if I am exhausted. :-(

July 28, 2016
A MyFibroTeam Member

Restless arm and leg syndrome. Xanax helps but u really need to get up and move ur arms and legs when it happens. It is VERY DISTURBING. Also hard to explain but I know how u feel.

July 28, 2016
A MyFibroTeam Member

I would say if it is tingling and numbness it is peripheral neuropathy. If your arms and legs feel like they have to move and your muscles feel like they have to contract it sounds like periodic limb movement disorder. I have both. Tried gabapentin for peripheral neuropathy. ...didn't work after a year. I stopped taking it. I take pramipexole for periodic limb movement disorder and love it.

August 11, 2016
A MyFibroTeam Member

It's your nerve endings they can't do anything for it , I've got it sometimes I feel like there's a thousand bees on my legs stinging me ,, and now it's in both legs it's on the top of my thighs and then they go numb and stay numb , till the bees come back at least twice daily agony xx

July 27, 2016

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