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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Neurologist Appointment

A MyFibroTeam Member asked a question 💭
Derby, UK

I have an appointment with my neurologist tomorrow who has been looking after me for the last 10 years for chronic migraine, do you think he will be interested in my fibro diagnosis? Not sure whether to bring it up!

July 6, 2016
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Answer Summary

Members strongly encouraged someone to share their fibromyalgia diagnosis with their neurologist during an upcoming appointment, with the... Read more

Members strongly encouraged someone to share their fibromyalgia diagnosis with their neurologist during an upcoming appointment, with the overwhelming consensus being that all doctors need to know every diagnosis and medication to provide the most effective treatment. Several members shared positive experiences with neurologists who either diagnosed their fibromyalgia, treated both migraines and fibro together, or adjusted treatment plans once fibro was mentioned, with many noting that migraines and chronic headaches are common symptoms of fibromyalgia that should be addressed holistically. A recurring theme was the importance of advocating for yourself by bringing complete symptom lists to appointments, as coordinated care between specialists leads to better outcomes, with the member later updating the group that their neurologist responded positively and shifted focus to managing fibro symptoms alongside well-controlled migraines.

A MyFibroTeam Member

Had a successful trip to see my neurologist who is concentrating more on my fibro as he feels my migraines are being well managed with the Gabapentin - he's liaising with my GP to try and find somethings that will help with my mood and insomnia - Amytriptaline is know longer doing the job! Thanks everyone for your input on this question, means a lot to get good advice from those that having been fighting this condition as long as you have💕

July 7, 2016
A MyFibroTeam Member

@A MyFibroTeam Member when it comes to fibromyalgia you are correct we ate more educated as we go through it Every day and we are diligently looking for ways to cure ourselves.

July 25, 2016
A MyFibroTeam Member

Good luck @Abimbola, I had a really positive appointment yesterday, hope you do to😊 xx

July 8, 2016
A MyFibroTeam Member

Never hurts to all questions. If he can't help hell direct you to the right doctor. As for my migraines yes I've seen him for that and for when I ephasha (sp?). Some meds cause it that they gave me for my fibro and that Dr sent me to neurology. At the time I didn't know that it was the med causing it, but when my friend who went through it and was a nurse she told me what caused it so I had to get off the meds. Fibro fog is bad enough.

July 7, 2016
A MyFibroTeam Member

I believe it is your obligation to disclose everything.

July 26, 2016

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