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A MyFibroTeam Member asked a question 💭
south manchester uk

My feet get really hot/cold, hurt..But I remeber just before I got diagnosed wth fibro..I noticed my hands kept getting really really hot.

May 10, 2016
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Answer Summary

Members connected deeply over the confusing and often extreme temperature dysregulation that comes with fibromyalgia, with many describing... Read more

Members connected deeply over the confusing and often extreme temperature dysregulation that comes with fibromyalgia, with many describing hands and feet that swing unpredictably between burning hot and painfully cold, sometimes within the same day. Several members shared that this happens because fibromyalgia disrupts the body's ability to maintain normal temperature homeostasis, leading to sudden hot flashes, drenching sweats, or what many called a 'deep bone cold' that no amount of layering seems to fix. A recurring theme was the creative and sometimes extreme measures people take to find relief, including sleeping with windows open in winter, soaking feet in snow, using cooling bed covers, layering clothing for quick adjustments, and relying on heating pads or hot tubs to chase away the bone-deep chill.

A MyFibroTeam Member

Great question and the team is right. I get cold hands and feet mostly - hands can be cold (freezing and painful) when it is over 100 degrees. Feet get more colder more and stay cold in the winter months. I have not had the really hot part - but do get pins and needles in hands and feet. Knees have burned like @A MyFibroTeam Member said. Seems like as the years go by I add more symptoms. RLS, GAD, ADHD, Costochondritis, TMJ, Headaches/migraines, and now pain at every trigger point then runs down arms and legs. Of course all of these things including the hot cold sensations from our bodies lack of temp. regulation - insomnia. Wow - kind of vented - tried to stay focused on the question lol - that is the ADHD in me.

May 10, 2016
A MyFibroTeam Member

Teresa-
Welcome! I have that body temperature issue as well and it really bites! Please know you have lots of support here and I hope you have a better day. Peace and hugs.

May 17, 2016
A MyFibroTeam Member

I think with fibro our body temperature regulater doesn't work! !!! I can be sitting at my desk n all of a sudden just break out sweating! !!! and sometimes when it's 90 + degrees out I get cold !!!! you just never know !!!!

September 5, 2016
A MyFibroTeam Member

Hi there. Do your fingers turn white and numb in the cold. Mine do and its hard to do things when it happens. It started with just my middle finger on my right hand some years ago, but now its spread to my other fingers. But its only on my right hand . My doctor says its just another symptom of fibro.
My fingers hurt after driving and i find it painful to straighten them after holding the steering wheel.
It seems like every day theres something else that hurts. X

May 12, 2016
A MyFibroTeam Member

My hands are very sensitive. When it gets really cold here in Nova Scotia in the winter, my fingers will just ache when I have to clean the snow off my car and when I get my hands wet and it is really cold. I don't have to drive far to work anymore, Thank the Lord, but my fingers would just ache from being on the cold steering wheel. I would take my one hand and put my fingers on my face or some exposed part of me to warm them up. Crazy!

May 11, 2016

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