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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
London, UK

I’m only 25 and I constantly get really hot and then really cold flushes and sometimes, I’ll have pins and needles feelings in my hands and feet if I press on it for a little while. I’m so scared I hate this so much. Does anyone else get this?

October 13, 2019
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Answer Summary

Members overwhelmingly confirmed experiencing the same hot and cold flushes described in the post, with many sharing that their body... Read more

Members overwhelmingly confirmed experiencing the same hot and cold flushes described in the post, with many sharing that their body temperature regulation feels completely broken, leaving them freezing one moment and dripping with sweat the next, regardless of the actual weather or season. Several members mentioned practical strategies they use to cope, including layering clothes for quick adjustments, using black cohosh supplements (with caution about liver health), installing air conditioning or cooling systems for summer, and keeping towels nearby for sudden sweating episodes. A recurring theme was the frustration of doctors dismissing these very real temperature swings as insignificant or imagined, leaving members feeling unsupported and searching for answers on their own while trying to maintain a sense of humor through the daily challenges.

A MyFibroTeam Member

@A MyFibroTeam Member ... your description is EXACTLY the same as my experience. Additionally, I find living in a cold climate truly tortureous and devastating to my health. I can't adjust to the weather changes and the cold literally makes me sick and invalided.

I'm about to post about cold temps in women with fibro.

October 14, 2019 (edited)
A MyFibroTeam Member

Yes! For years now! My average temp is 97F and I am usually freezing all the time. But I wake up in the middle of the night so hot that I turn down the heat. Only to wake up shivering. My doctors haven't acknowledged this drastic temp change I get throughout the day. They just shrug at me like it's all in my head

October 13, 2019
A MyFibroTeam Member

@A MyFibroTeam Member I feel crazy sometimes! The doctors give me the weirdest look until they feel my hands in 80F weather and their freezing cold!

October 14, 2019
A MyFibroTeam Member

My whole life I was always cold, since fibromyalgia I’m still cold a lot, but I get horrible hot flashes....then back to cold. Sometimes I take black cohosh, it does help minimize the hot flashes. I don’t like taking it for long periods because there are warnings about your liver. It’s a double edge sword 🙁

October 14, 2019
A MyFibroTeam Member

Pl1🌸...You might check with your Dr... symptoms are the same for many different things. Could be blood pressure, food, thyroid, meds, etc etc. I know you’re too young for menopause at 25😊. I hope you get some relief soon. Hugs🦋🌸🦋🌸🦋,Deb

October 13, 2019

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