Answer Summary
Members shared deeply personal strategies for managing the overwhelming fatigue that comes with fibromyalgia and ME/CFS, with the most... Read more
You need to pace yourself. Try and get outside when you can as vitamin D really helps. Be aware temperature, noise and other things can make it worse. I tend to listen to audio books more now. There is only one voice and no background noise. Lots of noises and loud noises can make things worse. Concentrating a lot can also make things worse. Do something and rest before you feel tired. Be aware what you do today can affect you for the next few weeks. Get your B12 and vitamin D levels checked as well as thyroid by Dr. Just incase as these can make you worse.
Hope it helps. Afraid there is no quick fix.
I plan my days with the expectation that I will not have more than 9 hours' worth of energy on any given day. I have also started using "pain dates"- one day per week (sometimes two if I expect a challenging week) I set aside time to catch up in the event that I am too sick to get work done earlier in the week. It helps me feel more organized and less stressed.
Try to pace myself. I don't work,,my kids are grown. I still find it hard sometimes. Just do the best I can. I wish I had a better answer for you. I have found if I'm faithful taking magnesium that helps a lot. I've noticed a lot of people have been prescribed a seizure medicine. I have to take one fm or no fm And I may be getting benefits from that I'm not aware of. Good luck Candace. Hugs -Em
My inability to sleep was horrible & dangerous for me. My doctor tried a lot of anti anxiety meds that were known to help with pain & sleep but I have a lot of adverse reactions to them. Now I know I won't be spelling this quite right but I was given Amotryptoline. It doesn't put you to sleep, but when you do go to sleep, it's a very deep sleep. I thought this was the best of all the different meds I tried. Some of the meds that actually put me to sleep, I never really felt rested on & I felt a bit hungover the next day. My sleep issues were serious so the other thing I had to do was to commit to getting sleep (that probably sounds funny). If I didn't get enough sleep that night, then I would take a nap (or least lay down with my eyes closed) for an hour. I have problems falling to sleep. A couple of things I do are: I relax my entire body...I start with my toes and concentrate on totally relaxing my toes...once relaxed I move to my arch and relax that part of my foot, then my ankle, and so on...I always fall asleep usually somewhere relaxing my arms or my neck at the worst. The other thing I will do is: I have a few old movies on my DVR...I know them inside & out and they are very low key movies. I turn the volume down to where I just have to struggle a bit to listen to the words (I have my TV set for auto shut off after about an hour or so). When I lay there with my eyes closed, just focused on listening to the movie, I fall asleep. I don't know if it will help for you but I thought I would pass it on. Kind regards
All I can say is pace yourself. Do a few things a day. Rest when you can. I consider my best time with energy is the morning so that is when I make plans for appointments or visits with friends, or even some house cleaning. By noon. Or 1 pm I am ready to rest. That is when I read or work online, or take a short 1 hour power nap to help with the sleepiness.
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