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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Glendale, CA

Hi, i 've been recently diagnosed with fm, i just have pain in my hands and feet. I read in many places that fm brings pain in different parts of the body, so is there a possibility of wrong diagnosis???

March 1, 2016
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Answer Summary

Members overwhelmingly reassured someone newly diagnosed with fibromyalgia who questioned whether localized hand and foot pain could truly be... Read more

Members overwhelmingly reassured someone newly diagnosed with fibromyalgia who questioned whether localized hand and foot pain could truly be FM, sharing that many of their own journeys began in exactly the same way before spreading to other areas over time. Several members emphasized the importance of early intervention through supplements like Vitamin D, CoQ10, fish oil, and probiotics, while others highlighted that FM diagnosis should only come after ruling out similar conditions like lupus, MS, and arthritis through thorough testing. A recurring theme was encouragement not to feel disheartened, with many members living full lives by learning to pace themselves, set boundaries, and manage symptoms proactively rather than waiting for progression.

A MyFibroTeam Member

It is true that it is easy to confuse the symptoms of arthritis, lupus, etc. with fibromyalgia. Fibro is usually the diagnosis a doctor comes through after exhausting tests of all similar conditions. Your doctor should have already done blood tests for lupus, etc. Once those come back negative, the doctor should check your for the trigger points, ask you other various questions, and then come to a fibro diagnosis. It should not be diagnosed as fibro without testing for the other similar conditions.

March 6, 2016
A MyFibroTeam Member

I agree with @A MyFibroTeam Member prevention is better than cure, I've had symptoms since childhood so can't really remember where it started, I think it started in my shins / ankles and feet. I'm nearly 40 and now suffer pain head to toe with constant pain in neck, shoulders, knees and hips. Other pains wax and wain like burning sensation on top of feet, wrist pain, sudden sharp head aches, IBS, or pins and needles the list is endless. My Rheumatologist insists fibromyalgia is not progressive however other conditions that may cross over are, such as arthritis., Maybe if caught early and managed appropriately you will be able to limit the severity of possible symptoms. Please don't be dis heartened by what you read, there are many of us with these symptoms who have managed to strike a balance and retain a semblence of normality. I work full time and manage a family home. I've just had to learn how to enjoy life at a slower pace and not to take on other peoples dramas. You'll be ok :)

March 1, 2016
A MyFibroTeam Member

I am not yet diagnosed but I have been researching & I know MS, Lupus & Cancer have all been misdiagnosed for Fibeomenelsia. If you look at the symptoms many are very similar. I am currently in the process of trying to find out what my source of suffering is. These apt's & tests all take so long I find myself doing my own research a lot.

March 3, 2016 (edited)
A MyFibroTeam Member

Mine started with the hands and feet. Then progressed to the rest of my body, and terrible headaches, then the fibrofog hit me really bad and I can no longer concentrate. I have been off on disability for over 5 years now. But with all that said I was diagnosed in 1986.

March 1, 2016
A MyFibroTeam Member

Mine started in my hands and feet as well

March 1, 2016

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