Connect with others who understand.

sign up log in
About MyFibroTeam
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Fibromyalgia & Neurapthy-disability

Fibromyalgia & Neurapthy-disability

Has anyone on here gone on disability for fibromyalgia or neuropathy? I have both, arthritis and ruptured disc in my back. Each day brings new challenges.

A MyFibroTeam Member said:

Yes. Fibro, along with other Diagnoses (which, many of us have at least one) can get you on Temp or Permanent Disability.

I managed an M.D.s office for a long time, thus, understanding the "system" of how office personnel can help or hinder your case.

Alot about getting Social Security Disability Approval or Denial (then you can Appeal) is ENSURING that Social Security receive your Application and all pertinent medical records in a Timely manner - a Real Reason to have the best professional care possible, along with good rapport with office personnel.

Do not bother with requesting Records from your M.D.s and other professional providers. Social Security will Request all Records, by Subpoena.

Have your Application with you at time of your doctor appt. have your portion completed. Make your appt. more about your Application, asking your doctor to complete (while you are there). Then, ask the office person to make a copy for you before you leave.

Otherwise, politely ask your M.D. if you can pick up the Application in a day or two so that you can photocopy for your records before mailing.

Now, follow up daily until you get the Application.then copy and mail ASAP!

It doesn't take long for processing of your Application, maybe 2weeks. Follow-up by going Online to check your Status with Social Security. . If necessary phone Social Security.

Upon Application processing, Supoenas will go out to the M.D. and others that you listed on the Application (X-ray, MRI, lab locations), this process is not always that quick.

FOLLOW UP with the places that were served Subpoenas to ENSURE that they RESPOND to the Subpoenas ASAP. This is where the DELAY in your Application can lag because many see them as a hassle or extra work and may put it aside.

Too many times, Subpoenas are set aside and even filed into the patient chart or elsewhere! Here is where important filing time is lost. Social Security is serious about the Deadlines they post.

There are advocacy groups like ALSUP or who can do the above for you, however, they are busy and don't have the rapport nor the ability to followup as well as you may be able.

Finally, if you are Denied, APPEAL!

My Very BEST!
LET

posted over 4 years ago
A MyFibroTeam Member said:

Yes' but boy was it a fight and that is with 5 other conditions. Twice I was refused but kept fighting because my doctor would not sign me off because i was to ill to work. Third time I was excepted but was refused by the ESA so they took it to the highet tribunal and the ESA lost. They were told that the points I had been awarded were far to low' not only did I win but they give me higher points and I was back payed for nearly 13 months, and all thanks to pip and Citizens advice because after the second refusal I was prepared to give up but someone told me to go to Citizens advice because it was making me physically ill and they done everything for me' I did nothing I just could not go through filling out anymore forms. Just be careful what u say and do' because the first time they failed medical because I was carrying a little handbag believe it or not, they are very crafty. I was so upset because I felt like I was dying and they were more or less telling me I was faking it. Please to any of you who are fighting don't give up' I nearly did so don't be embarresed to ask for help. Hope I have been some what helpful. Big hugs xxx

posted over 4 years ago
A MyFibroTeam Member said:

I'm on disability for fibromyalgia.Both Social Security and through my previous employer. I.provided Social Security with my medical records on paper from all the doctors who had treated me. I was told at the SS office that the most common cause of denial of benefits is that doctors don't all respond. This means that you could get turned down because vital information is missing.

posted over 4 years ago
A MyFibroTeam Member said:

I have had fibromyalgia for many many years. The pain continued to become worse and worse but I wouldn't let it stop me from making a living for myself. It wasn't until a year ago I was working and I found that I couldn't keep up the pain was so severe and I became very forgetful. I couldn't remember anything form one moment to the next. Someone had suggested that I apply for SSDI and I am receiving it today but I still try and keep active. We have to keep moving forward and enjoy as much of life as we can. Somedays it's not fun but I bless God that I am alive!

posted over 4 years ago
A MyFibroTeam Member said:

I'm on disability since 2013. U had to get a lawyer after I was denied twice both times due to my age. So definitely get a lawyer.. I'm on disability due to fibro and a bunch of other stuff.. I s, ic, cfs, anxiety, migraines, bi polar, endo, heat condition, kidney disease, and fatty liver..

posted over 4 years ago
Browse more questions and answers
Continue with Facebook
Sign up with your email
Already a Member? Log in