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A MyFibroTeam Member asked a question 💭
Cincinnati, OH

I received my diagnosis last Thursday and my rheumatologist released me back to my PCP. I am disappointed by that because I don't know if my PCP is knowledgeable about fibro. I have not talked with her about it at all. I'm not scheduled to go back to her until May for my physical. Is it normal for your rheumatologist to do that? Should I make an appointment to see PCP sooner. I just started gabapentin and have a question but I feel like I don't have a doctor to ask now. Thoughts?

January 26, 2016
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Answer Summary

Members confirmed that being released back to a primary care physician after a fibromyalgia diagnosis is common practice in the US, UK, and... Read more

Members confirmed that being released back to a primary care physician after a fibromyalgia diagnosis is common practice in the US, UK, and Canada, often because rheumatologists are overloaded and fibromyalgia has been reclassified as neurological rather than rheumatic. Several members strongly recommended scheduling an earlier appointment with the PCP to assess their knowledge of fibro, discuss the new gabapentin prescription, and review the rheumatologist's letter with medication recommendations, with many sharing that they had to change doctors multiple times before finding one who was supportive and knowledgeable. A recurring theme was the importance of self-advocacy when navigating dismissive or uninformed providers, with members encouraging the original poster to trust their instincts, seek specialists like pain clinics if needed, and ensure they have a doctor who truly listens and believes them.

A MyFibroTeam Member

My PCP had an " attitude " about Fibro. To quote him : " Women have the same complaints when they are going thru menopause. " HELLO ??? Blew me off. Needless to say, I found a pain specialist. I'm not insinuating your PCP is anything like mine, but I would make an earlier appt with your PCP and get a ' feel ' for how much he/she knows about Fibro at least you'll know. If you are not satisfied, you'll know maybe to look around for someone else. Easier said than done I KNOW ! Best of luck xx

January 26, 2016
A MyFibroTeam Member

If your PCP is like mine you probably are better off-my PCP wanted to have me continue with a med I id not need that was messing up my liver-I gave her my are you insane look. She is a gate way doc-can only send you to someone else -I told one nurse in the group she is no use.

February 15, 2016
A MyFibroTeam Member

It happened that way for me, as well. Here in the U.S. It is common practice to send you back to your GP, who had originally diagnosed me.

January 28, 2016
A MyFibroTeam Member

My rheumy sent me back to my pcp also. he specializes in rheumatology so I am in good hands in one office I went to a rheumy for a second opinion.

January 27, 2016
A MyFibroTeam Member

My rheumatologist had me see a neurologist and then they released me back to my primary care. Thankfully my primary care is aware of Chronic Fatigue Syndrome and Fibro so she has been awesome at helping me so far. Best of luck!

January 26, 2016

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