Answer Summary

Members rallied around the frustration of feeling dismissed by doctors who didn't make the original fibromyalgia diagnosis, with many sharing... Read more

Members rallied around the frustration of feeling dismissed by doctors who didn't make the original fibromyalgia diagnosis, with many sharing painful experiences of specialists refusing treatment, ordering expensive tests, or spending minimal time with them before sending them back to their primary care physician. Several members offered practical advice, including switching to a different neurologist or rheumatologist who will listen, asking a PCP for better referrals, and being willing to advocate loudly for proper care even when it means correcting doctors or changing providers frequently. A recurring theme was the emotional toll of losing trust in doctors who seem more focused on procedures than on the patient's wellbeing, and the empowering reminder that patients deserve to feel heard and can always seek out providers who take their pain seriously.