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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
January 15, 2016
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Answer Summary

Members connected over the painful and perplexing experience of burning skin sensations, with many describing feelings like sunburn across... Read more

Members connected over the painful and perplexing experience of burning skin sensations, with many describing feelings like sunburn across their face, legs, feet, arms, and sometimes entire body, often without any visible rash. Several members shared relief strategies including Gold Bond medicated lotion, hot Epsom salt baths, aloe vera, heated throws, and avoiding cold applications, while others suggested getting tested for lupus due to the characteristic butterfly rash and taking photos of symptoms to show doctors. A recurring theme was the frustration of unpredictable flare-ups that limit daily activities like wearing shoes or leaving the house, balanced by the community's gratitude for discovering they are not alone in this strange and uncomfortable experience.

A MyFibroTeam Member

I use goldbond medicated lotion. I've had the body wide sunburn feeling a couple of times. Hope this helps. Hug

January 19, 2016
A MyFibroTeam Member

Yes I do get this along with a prickly sensation. Its usually around my cheeks and ears but sometimes I have that burning in my legs and arms in the muscles like they are on fire. I think it is nerves misfiring. Have you been tested for Lupus as there is a common red raised rash people get on their faces that they call the butterfly rash. I don't think its itchy but I am not sure if it feels hot or not. Sorry I don't have any answers for you but maybe you should take a photo of your face when you have these symptoms and then you could show your doctor when you are in for a visit.

January 15, 2016
A MyFibroTeam Member

I've been putting aloe on my face, helps for about an hour

January 19, 2016
A MyFibroTeam Member

I have all over burning almost in daily basis especially my hands and feet. I have found a hot bath with epsome salt relieves the pain for a while. That's what I do as soon as I get off WK. On days I don't have to WK I find myself taking at least 3 to 4 times a day because the burning is so intense.

January 19, 2016
A MyFibroTeam Member

Yes twice in the past year or so my whole body has felt like I had a really bad sunburn. My skin felt hot and itchy and like it would be red but it wasn't. I used gold bond medicated in the kind of pale orange bottle with red letters. It helped relieve it some. It eventually ran it's course I guess. Very uncomfortable. Hope this helps. Hug. :)

January 17, 2016

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