We all speak of the dreaded " flare up" but do we all experience the same symptoms ? For my own curiosity I'd like to know what others call their flare up . A flare to me is my whole body filled with aching , burning , stinging relentless pain. My mind becomes cloudy, thoughts make no sense, speaking becomes hard because the brain and mouth aren't working together . Nothing takes the pain away, no amount of drugs, therapy or rest eases it, it's like the flare takes over and… read more
My flare ups put me down for months not days. I have dizzy spells to tne extent that I fall or have vision problems. My sight goes double and as long as the flare up lasts so do my headaches. My bowels do a job, one minute I have severe constipation and the next diarreha hits so fast I can't make it to the washroom on time. My sleep pattern is disturbed and I am lucky if I get 5 hrs sleep. I am nauseated most of the time during the flare up. I have constant body pain and stomach cramps. Restless leg syndrome is not only at night but during the day. My jaws ache like I have a bad toothache. I am listless and exhausted even though I havent done a thing. My body expériences. tingling as if I have something crawling all over me. The lack of memory is so bad I am always having to ask someone to help me say the word I mean. If I drive I forget where I am going. I have never felt so helpless or hopeless. I cant even take a shower for the pain and exhaustionThis disease sucks. But usually there are good days after the flare up. Thank God for small mercies.
I'm just getting back home from the store. I'm having a flare up right now. I have been trying to get some exercise by walking through Walmart. Today, I could barely get in and out of the car because of this being a painful day. I had to use a scooter in the store. I have a dentist appointment in a couple of hours, but right now I just want to lay here in the quiet. My pain is different on days like today. Someone mentioned to me before that the barometric pressure with the weather changes truly effects body pain. It's beautiful outside, but I can still feel the dampness in the air. We each have our different symptoms, but the same results. . .PAIN! I keep praying for the perfect relief for all of us.
Sounds the same to me muscles tight as rocks can't move without wanting to scream. I feel mean and nasty and I want to be far from that. Than the lack of sleep or being so exhausted I fall asleep sitting up.
Oh and the lack of memory this disease is pure evil. I know God has a purpose for every thing is hope I find it soin.
This is a really good question and everyone has shared some great feedback. I have to agree with most of the others, for the most part. But for me, I have come to classify my flares in 3 different ways. First, I will say there is always increased pain. And the brain fog is usually increased, too. Although sometimes worse, depending on the flare. Having that said, it seems like my flares are one of 3 types (my own classification system): 1) an "exhaustion flare" where all-consuming fatigue is the dominant symptom; 2) a "pain flare" where pain is the dominant symptom; and 3) a "mega flare" where the pain and fatigue are so bad it puts me in bed or I can barely function. This isn't scientific, of course, but it seems to be kinda how my flares seem to come. No matter which symptom is dominant, there is always a marked increase in symptoms, as most of you have shared. And the flares, for me, seem to last anywhere from three or four days to two weeks. This past one has been the longest I can remember, lasting 3 weeks.
Peeps check out Leaky Gut and Bone broth. My pain levels gone from 120/100 to 30/100.... also looked at organic foods...have so many sensitivities that I believe its all connected. I am feeling so much better than I did..its worth doing the food diary...I am more stiff than pain..but I can now put finger on food that causes . Me pain.I still have stiffness and eye lids not coordinating...and odd twinge...but can now walk into town from home..only done 3 times in last month but hey its a start...I have taken control because I suddenly refused to let this control me I was miserable...so please peeps read up on Leaky gut and if makes sense to you try it...you have nothing to lose and everythong to gain. My Dr is on board. 😊