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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Cambridge, UK

Hi it's me again with yet another question x
Being newly diagnosed with fibromyalgia I'm a newbie here and still getting to understand symptoms x

I'm currently laid in bed ... extreme jelly like legs..hubby had to help me to the loo... I ache all over.. feel dizzy and as I lay here my legs are twitching and jumping all by themselves x
My u yr old is snuggles up with me and has noticed it.. sometimes the jumps so bad it's almost off the bed x
I was just wondering if it's another symptom ??

January 1, 2016
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Answer Summary

Members confirmed that involuntary leg twitching and jumping, especially when trying to relax or sleep, is a common fibromyalgia symptom known... Read more

Members confirmed that involuntary leg twitching and jumping, especially when trying to relax or sleep, is a common fibromyalgia symptom known as restless leg syndrome (RLS). Several members shared that medications like Ropinirole, Mirapex, and pregabalin have helped manage their symptoms, though some noted the need to adjust dosages over time or that overexertion tends to worsen the twitching. A recurring theme was the relief of knowing they weren't alone in experiencing these uncontrollable movements, with many offering solidarity and practical tips like using heating pads or pillows between the knees for comfort.

A MyFibroTeam Member

Sounds like restless leg syndrome (RLS)
I also have that and take ropinirole for it. Manageable thankfully.
Thinking my dosage needs going up now though

January 1, 2016
A MyFibroTeam Member

I suffer from restless leg syndrome. The worst case. I take Ropinerole twice a day and it keeps it in check. Restless leg kept me walking the floor all the time until I would fall into bed from exoustion. It was torture.

January 1, 2016
A MyFibroTeam Member

OMG...I have this too & really bad. Can't sit or stand still. Can't settle down at night. Always rocking, swaying, twitching. Irritates people around me but I can't help it😁 Don't know if it's a symptom of the fibro or part of my withdrawal from neurontin ⁉️⁉️

January 1, 2016 (edited)
A MyFibroTeam Member

Oh yes my body jumps everyday while sitting espAnd occas while. Standing. I guess it's all a part of fibro.

January 1, 2016
A MyFibroTeam Member

Yes I suffer to. I sleep with a pillow between my knees find that helps at times

August 29, 2016

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