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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Mission, TX

So I’ve had several people reach out to me over the last few months about their fibro symptoms. Most are concerned about twitching which is what I experience. Mine are subtle (fasciculations) in which I can feel and see them. Some are strong where others can see, others not. Like an eye twitch but all over my body. Now I don’t experience the myoclonic jerks where my arm or legs will move unintentionally, but I have experienced the kind like when you fall asleep. Which ones do you experience… read more

January 10, 2019
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Answer Summary

Members shared their experiences with muscle twitching and jerking related to fibromyalgia, with many describing constant fasciculations... Read more

Members shared their experiences with muscle twitching and jerking related to fibromyalgia, with many describing constant fasciculations (small twitches) in their legs, calves, toes, and face, as well as larger myoclonic jerks that occur primarily at night and can disturb sleep or startle partners. Several members found relief through magnesium and B12 supplements, gabapentin for nighttime jerking, cardio exercise, hot tubs, and saunas, while others mentioned undergoing EMG tests and neurological evaluations that came back clear despite persistent symptoms. A recurring theme was the frustration of living with bizarre and unpredictable sensations like internal vibrations, buzzing, electric shocks, and painful foot spasms, combined with the relief of knowing others in the community share these frightening experiences.

A MyFibroTeam Member

Hi there! Yes, I do. Daily. Some days are better than others. I totally understand how you feel. I also have other sensations like buzzing, tingling, muscle
Weakness feeling. I saw a neurologist in December and had a EMG, and MRI done, no neurological disease. But the symptoms are still there and it’s very frustrating.

April 19, 2019
A MyFibroTeam Member

@A MyFibroTeam Member I also have the vibration sensation and buzzing. It’s more prominent when I wake up, it’s like I turned on the engine in my body! As if my nerves are waking up. The twitching I experience throughout the day. Frustrating.

January 10, 2019
A MyFibroTeam Member

I too have the fasiculations or twitching that you sometimes can see but I certainly feel. In addition I have what some described as internal vibrations. It is very predictable that it will happen when I lay down but it will also happen periodically and madr worse by stress. Numbness, and tingling comes and goes but pain somewhere is constant.

January 10, 2019
A MyFibroTeam Member

Hi Suzette, I hope all is well. Better here now that it's warming up. I know this is an old post, but I'm still terrified of what mayhem is going on in my body. Recently saw a Neuro and my primary care physician both agreed that they whole heartedly do not think I have anything "neurological" going on yet I still experience fasciculations daily all over. I feel like I'm going bananas over here lol. Do you still get the muscle twitching/fasculations?

April 18, 2019
A MyFibroTeam Member

I have that on and off, one of the most persistent symptom. What helps me:

1. B12 intake
2. Magnesium intake
3. Cardio exercises
4. Hot Tub and Sauna

January 31, 2019

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