Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
West Fargo, ND

Help please. I need advice. I've been referred to a neurologist for the possibility of ALS or MS and couldn't get in until the end of January. With comments from the neurosurgeon I begged my way in to see the neurologist tomorrow. I'm in the process of appealing my short term disability denial and when I told my husband tonight how nervous I am about the neurologist appointment tomorrow he was more concerned with meeting with my credit union regarding my credit card since I currently have no… read more

December 27, 2015
 · 
Reactions

Answer Summary

Members overwhelmingly validated someone's concern about prioritizing a neurologist appointment over a credit union meeting, emphasizing that... Read more

Members overwhelmingly validated someone's concern about prioritizing a neurologist appointment over a credit union meeting, emphasizing that health must always come first and financial matters can wait. Several members shared practical advice, including getting comprehensive testing done before insurance resets, bringing a support person to results appointments rather than initial consultations, and working with disability lawyers who only charge if benefits are approved. A recurring theme was the emotional toll of navigating serious health concerns without adequate partner support, with many members encouraging self-advocacy, persistence through the lengthy disability appeals process, and the understanding that answers take time but are worth pursuing.

A MyFibroTeam Member

I go to a neurologist and a rheumatologist. They thought I had parkinsons and or MS, it has been alot of guess work, it is alot of testing . I had a mri of my brain in December of 2014 then I had a mri of my brain, neck, and lower back, in December of 2015 and lots of blood tests ruling things out. My neurologist did diagnose me with fibromyalgia, but he said I'm a tough case (tremors) and is sending me back to my rheumatologist January 11th. Good luck! Please let us know how you do, Hugs and prayers!

December 28, 2015
A MyFibroTeam Member

be sure to make sure with ssi to that doc diagnose you with cronic fatigue syndrome that is how to get them to ignolege the fibro sorry cant type lol , I tried in 2006 and was denied keep your hopes up make sure that is in your med record for every doc infizes how much the cronic fatigue with the fibro affects you . the cronic fatuigue is the only way to open a certain form that will help with the testing they do at ssi

December 27, 2015
A MyFibroTeam Member

Hang in there just breath, getting upset wouldn't help you. Credit union can wait, your health is more important. I been waiting for Social Security for 3 years, I don't care about the debt anymore my health is more important. Hope things work out at neurologist. Just breath

December 27, 2015
A MyFibroTeam Member

I'd go to the neurologist, but I'd go on my own. The doctor most likely won't be able to tell you anything tomorrow, so having your husband there probably wouldn't help you out anyway. It would be more important for him to go with you when you get test results. But, getting the ball rolling to find out what is going on will give you answers sooner which is important for your well being. You might even be able to make it to the credit union later in the day. Good luck to you!

December 27, 2015
A MyFibroTeam Member

Your health is your priority. That's such a scary thing to have on your mind.

December 28, 2015

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Derby, UK

A MyFibroTeam Member asked a question 💭
Dunfermline, UK

A MyFibroTeam Member asked a question 💭
Urbana, OH