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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question πŸ’­
Viola, AR

I have been taking Ambein for a while now. This is like my third of fourth time on it. I was also taking tramadol to help sleep as well but it has a bad side effect. Anyways, I was wondering how many people suffer from insomnia with the fibro making it worse, and then the Ambein doesn't work?. :( πŸŽƒπŸŽƒ

October 28, 2015 (edited)
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Answer Summary

Members connected over the frustration of Ambien not working for fibromyalgia-related insomnia, with many sharing that medications affect each... Read more

Members connected over the frustration of Ambien not working for fibromyalgia-related insomnia, with many sharing that medications affect each person differently and often require trial and error to find what works. Several members described alternatives that helped them, including Ativan, Xanax, Elavil, trazodone (though some experienced serious side effects like falls or extreme grogginess), melatonin at higher doses, and non-medication strategies like limiting caffeine, improving sleep environment, and timing Cymbalta doses earlier in the day. A recurring theme was the importance of rotating sleep medications to prevent tolerance and dependence, considering underlying factors like pain and restless legs, and being cautious with benzodiazepines due to addiction risks and interactions with depression.

A MyFibroTeam Member

I've been on Elavil 20 mg for about a month now and it seems to be working great! It took a bit of time, but I am no longer waking up at the 4 hour mark and am sleeping straight through the night. I am so grateful to my co-worker for sharing that with me! :)

November 11, 2015 (edited)
A MyFibroTeam Member

Wow. Cymbalta caused insomnia for you? I take 60 mg both morning and night. Then again, I have chronic fatigue too. Goes to show ya how each one of us fibromites is different!! Lol 🐸

October 28, 2015 (edited)
A MyFibroTeam Member

As Lori mentioned melatonin may help but at this stage of insomnia probably not. Once u get your sleep under control, adding Melatonin may work. If you have fibro, most likely you have a regular physician and pretty good insurance ( I pray). So I would request a sleep study . Sleep studies aren't just for the people who stop breathing at night . It's also for us insomniacs . They can help you with your sleep habits . Now a little about ambien that may help you. Ambien you should not heat on a long-term continual basis. You can set it up with your doctor that maybe you take ambien two to three times a week. I'll tell you why. I was taking Ambien and my husband says that I was trying to get out of the window one night, but I don't know want that again; I also need it to work for me when I need sleep. I need it to put me to sleep and keep me sleep, so I take the extended release. I make sure that I take my cymbalta first thing in the morning; cymbalta causes insomnia. And you really have to weigh the pros and cons of taking Cymbalta versus the side effects that it causes. So I take cymbalta as early as possible in the morning. Then I don't take ambien but twice or thrice a week. And I stagger those days. So they take it Monday I won't take it again so Wednesday or Friday . I pick the days where sleep is most important. This deceased my bodies tolerance and prevents dependence. Now Atarax can help. I love atarax. I take 50mg on the nights I'm itching, have a headache, just anxious and it does the trick.. In the meantime . Once u get your sleep under control Adding Melatonin may work. ambien can cause withdrawal syndrome when you stop taking it so please don't stop taking it cold turkey. I experienced night terrors not nightmares night terrors and some other things when I stop taking my ambien. So I learn my lesson . Better sleep health is the goal. I hope this helps.

October 28, 2015 (edited)
A MyFibroTeam Member

@A MyFibroTeam Member It wasn't that bad. At first I was real embarrased about it, but after having this disease for so long and then I ended up with a siezure and that was aweful. I got tired of being embarrassed about stuff that happened to me. I can't control the disease so why get embarrassed by stuff I can't control.

November 1, 2015
A MyFibroTeam Member

Yea, Trazodone was really bad for me! I thought I was ODing.. I quit taking it. Like I mentioned I now have Xanax, it works great for me..but I think we're all so different in how certain drugs effect us. This has been the craziest and mind boggling disease that effects so many of us. I pray for a cure or at least knowledge on how to manage it.
Btw I thought it was courageous that you shared some embarrassing information. It just might help someone else or at least make us feel more comfortable sharing some of our information and not feel judged. I have experienced all of the same things you have. ;-)

October 31, 2015 (edited)

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