@A MyFibroTeam Member I know last night was so difficult. I'm just checking in on you. How are you holding up today?
I understand that living with severe me/cfs is more difficult than most of us can even imagine, but we try. We care about you and we wish we could help! Let us know how you're doing, friend, if you have the energy/when you are able, ok?
Hi Trevor, I think it might be because the mitochondria is disabled.
The mitochondria is part of our cells that makes ✨energy✨.
It is possible that inflammation created damage in the mitochondria.
The inflammation might have been due to a virus, for example, for some people.
Scientists are still trying to figure it out but this is one theory.
https://www.youtube.com/watch?v=l1ufdoV5vYY
https://pmc.ncbi.nlm.nih.gov/articles/PMC12151296/
Thank you for the added information, it is very helpful to me to be reminded how my fibro/CFS started. I figured I must have had it when I was a teenager because I had really heavy periods all the time, at least until I finally had menopause, I just didn't know what it was (this was back in the late 60s to around 60, but then I had other issues.
Hope you all are doing as well as can be expected.
Since you're managing fibromyalgia, it's worth focusing on the fatigue that comes with it, as the two experiences can feel very similar and are often talked about together in the fibromyalgia community.
Fibromyalgia-related fatigue has several known contributors:
- Brain changes – The part of the brain that processes Show Full Answer