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A MyFibroTeam Member asked a question đź’­
Cortland, NY

Having Cfs M.e. / Fibromyalgia , pots , multiple chemical sensitivities and other related syndromes

November 16, 2025
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Answer Summary

Members rallied around Trevor's deeply emotional question about finding purpose while living with CFS, fibromyalgia, POTS, and multiple... Read more

Members rallied around Trevor's deeply emotional question about finding purpose while living with CFS, fibromyalgia, POTS, and multiple chemical sensitivities, offering heartfelt reassurance that his life has real value and that he is not alone. Several members shared faith-based comfort, pointing to scripture like Psalms and the Book of Job, while encouraging daily small acts like stepping outside for light and focusing on gratitude. One member shared an uplifting personal story of finding meaning through disability advocacy and support groups, reminding Trevor that connection and purpose can still be found.

A MyFibroTeam Member

@A MyFibroTeam Member Please remember you are not alone. Your life has value and meaning and we care about you.
I remember you said that you are a Christian and I wondered if this very short read might comfort you.
https://therescuedletters.com/livingletters/tru...
Please keep writing, Trevor, keep sharing, keep reaching out.
đź’›

5-Minute Devo | Trusting God's Goodness in Chronic Illness
5-Minute Devo | Trusting God's Goodness in Chronic Illness
November 16, 2025
A MyFibroTeam Member

Hang in there. I was depressed for years then I got support from others with fibro. I also joined a wonderful supportive disability group and found myself and meaning. I now am a disability advocate and was in my first performance of disability monologues. Life is different, but there is support and kindness and understanding.

November 17, 2025
A MyFibroTeam Member

Also, stop using detergents that have chemicals and perfumes in them. There are a lot of common sense things. Read about about different cleaning products and use natural ones. Baking soda and vinegar is very good for many things. Find others.

November 16, 2025
MyFibroTeam

How can someone find purpose while living with fibromyalgia and related conditions?

Living with fibromyalgia and its comorbidities can feel incredibly isolating and overwhelming, but many have found ways to create meaning even within these limitations.

Finding purpose often comes from recognizing that health challenges Show Full Answer

How can someone find purpose while living with fibromyalgia and related conditions?

Living with fibromyalgia and its comorbidities can feel incredibly isolating and overwhelming, but many have found ways to create meaning even within these limitations.

Finding purpose often comes from recognizing that health challenges don't define all of who someone is. There's still a person inside wanting to create, connect, and experience joy—even if those moments are fleeting or come in small fragments.

Ways people find purpose include:

- Pursuing creative outlets during better moments (music, writing, crafts, art)
- Connecting with others who understand the struggle
- Taking control through lifestyle changes (diet, removing toxins, exploring alternative treatments)
- Breaking free from just accepting a label and seeking better answers about what's happening in the body
- Celebrating small victories and "lucky days" when accomplishments are possible

The journey isn't about returning to who someone was before—it's about adapting and finding what brings fulfillment now. Some discover hope through alternative medicine approaches, others through advocacy or creative expression done in manageable pieces.

Those difficult days when everything feels impossible? They're real and valid. But so are the moments when something meaningful breaks through. Both exist together, and holding onto those glimpses of living—however small—can provide threads of purpose worth following.

November 16, 2025
A MyFibroTeam Member

Trevor!
Your thoughts are natural given this illness. That being said, we must reach out to the supernatural! You and I are being formed and are a temple for God to dwell in. He suffered all for each and all. We accept the good things, He accepted all and did it for love. Our pain forms, molds and accompanies us and trains us, but also when offered freely in humble trust to The Lord, He uses it for souls, and He never ever forgets you. There is a reward available for those who choose it. Choose Him. Think of His sorrows and agony and that of his dear Mother and know that there IS most definitely a purpose and God will bring good out of all of this. We need you Trevor. You are a blessing to the group! Please please try to think of one thing you are truly grateful for.
Think of the spikes driven into Christ's body. Think of his Mother looking on. Why did He endure this? That all who believe in Him might not perish. He obeyed and trusted His Father. Jesus was mocked, spit on, deserted, tortured, reviled, died and accepted all of this in full measure, that we might someday triumph over sin and reap an eternal reward. Eternity for us begins now and we wait to draw our last breath at His command. We obediently accept as He did! If we live with Him, we shall reign with Him. Surrender & Trust!!!
Surrender is NOT to give up or to despair. Surrender is to trust in Peace that this will all be turned for good if you do not rebel. Do all you can to heal, but do not refuse to suffer, because it helps you to be formed and ready. Please do not despair! Despair only leads to an unhappy demise and some decisions defeat the whole purpose of the desired end. You are loved and of infinite value and dignity.

November 16, 2025

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