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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Cortland, NY
August 3
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A MyFibroTeam Member

I’ve had fibro for many yrs. I receive disability benefits. I had a lawyer. You should know how your attorney gets paid. In the US before you receive your 1st check, Social Security takes out your lawyer’fee & sends it to them. My attorney had the nerve to call me as he didn’t like the fee Soc Sec sent him. He wanted me to pay him more money. Of course I said no way.

August 4
A MyFibroTeam Member

Had fibro many yrs. I don’t leave my house except for dr appts. I hurt too much to get dressed & exhausted. I order everything online. Have groceries delivered. Due to slow reflexes & fibro fog I stopped driving 20 yrs ago. I have been in better spirits lately. My dog gives me a reason to keep on. I accepted my plight a long time ago. My body is sick, but my mind is strong. Persevere.

August 5
A MyFibroTeam Member

Sherry - I was denied twice. The third time I went before an administrative law judge. I was able to explain what my life was like w/fibro. Several weeks later I was approved.

August 4
A MyFibroTeam Member

I was denied 3 times, but I just kept going, I would appeal every time. I did have a lawyer. In fact, at one point, even my lawyer threw in the towel. Said they'd done as much as they could. So they terminated my agreement with them, and i didnt have to pay them. I just got another lawyer and appealed again. Disability lawyers typically don't get paid until and unless you do! If you get one, you just need to make sure that is true with them. Persevere! And advocate for yourself. Keep going to doctors, and getting them to send the information to your lawyer for your records. Anyways, that worked for me, I hope it does for you.

August 13
MyFibroTeam

You are definitely not alone in this. Many people with fibromyalgia find that the condition significantly impacts their ability to work and carry out daily activities, and some do end up on disability.

One MyFibroTeam member shared that after more than 25 years living with fibromyalgia, she was no longer able to hold down Show Full Answer

You are definitely not alone in this. Many people with fibromyalgia find that the condition significantly impacts their ability to work and carry out daily activities, and some do end up on disability.

One MyFibroTeam member shared that after more than 25 years living with fibromyalgia, she was no longer able to hold down a job and successfully applied for social security disability benefits — with the help of a lawyer who specialized in disability cases. Another MyFibroTeam member described how fibromyalgia left her housebound for weeks at a time, with limited energy (or "spoons") making even basic outings feel like a luxury.

The challenges that can lead to disability include:

- Chronic, widespread pain that limits physical activity
- Severe fatigue that makes sustained work difficult
- Cognitive difficulties like brain fog
- Sensory overload in busy environments
- Sleep disturbances affecting daily functioning

If disability is something being considered, consulting a lawyer who specializes in disability claims can make a real difference in navigating the process successfully.

August 3

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