I have 10 minutes of low energy and then I have to rest until I uncease I do this all day.

So sorry to hear that. I am not at the moment. I try to keep moving to help me with daily activities. Are you able to sit up and bed and do some of your chair exercises in bed?

Yes, I’m in bed quite a bit, mostly during the winter. I can move out to the garden in the summer! When I’m in flair I can be mostly bed-ridden for weeks and/or months! I have very good prescriptions that make my pain better but this condition is for the rest of my life. I have to add Disc Degenerative Disease, arthritis, chronic pain and fatigue and my list could go on. I try to look at each day as a new part of my journey. I don’t think I could do this alone and without my husband, he is amazing. I don’t like to think about it, the what if’s…it’s hard to be stuck in this body that’s betraying you everyday. You have to choose how you do that.

I am bed bound a few days a week. I know it will get worse in the future. One thing I'd like to share with everybody that works for me... I'll give an example.... I'm sitting at the dining room table and I need to use the restroom, so I stand up and look at everything on the table and see if anything can be taken in that direction. There's something that needs to go in my bedroom closet so I grab it because that's the direction I'm moving.
My house is messy because I often set things down wherever I'm standing when I run out of energy. Using that trick helps keep things from completely overflowing. Just pick up one or two items and bring them closer to where they need to be.