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“High histamine levels often act as a hidden driver or amplifier for fibromyalgia and ME/CFS flares. Excess histamine—whether from histamine intolerance or Mast Cell Activation Syndrome (MCAS)—triggers neuroinflammation and pain pathways, severely worsening fatigue, "brain fog," widespread pain, and gastrointestinal symptoms.
Why Histamine Flares Fibromyalgia and ME/CFSNeuroinflammation: Histamine functions as a neurotransmitter in the brain. High levels excite the… read more
Answer Summary
Members connected over the question of histamines as a hidden driver of fibromyalgia and ME/CFS flares, with many finding the information... Read more
@A MyFibroTeam Member
As to where Infind my information, it is from a multitude of sites.
I have so many medical sites send me emails on topics.
I am now on substack.
It is by sheer luck that I saw the article on histamines there.
I also am signed up for MayoClinicConnect..
I am on X which has so many doctors in many fields post on there.
There are groups on Covid and Long Covid and many others that talk about health issues.
I always Google everything and try to give a link site to where I find things if I can.
@A MyFibroTeam Member
I have osteoarthritis and bone on bone osteoarthritis in both knees.
I have those osteoarthritis knuckles in my hands which started whennI was 28.
That said, I have had little to no pain in my hands and knees across the years.
Clear all osteoarthritis remedies with a Dr.
I take 4 glucosamine Chondroitin capsules a ds.
2 Magnesium glycinate capsules.
2 plant collagen capsules ( Hyaluronic acid )
2 Lfe Extension ArthroMax Advanced capsules that have collagen and boron and frankincense.
Tried generic Claritin (Loratadine) which didn’t work for me.
As far as taking collagen, everyone has to research this for pros and cons healthwise and discuss this with their doctors.
( My theory, which is mine only and not backed to any site or study,) is that taking collagen (which is what protects you knee joints and wears away with osteoarthritis, may help
restore some collagen to these areas.
The hyaluronic acid is what is given as an injection to the knees of those with osteoarthritis. Logical to me is to take these tablets.which I have taken for more than 10 years.
I may be one of the fortunate ones with osteoarthritis with no pain. Or, for me, the glucosamine chondridrin and collagens block any pain.
.
Also discovered that in Canada and Europe they have a new procedure to add a cushioning of a product like hyaluronic acid which lasts up to 2 years or more. It is fairly new….
@A MyFibroTeam Member
Lore_HFEJ
@A MyFibroTeam Member I was impressed with how fast I was seen. He increased my dosage of Gabapentin, wrote me a prescription for aquatic therapy, and he’s also setting me up for a trigger point injection in my neck and hips.
I was thrilled 😁
Also, apropos of nothing, he was young and handsome, hehehe. 🤭
@A MyFibroTeam Member is it possible to ask for a higher dose of Gabapentin?
MCAS tripple therapy. look it up. it works for some people
i tried with no avail, but i had a feeling this was a deeper issue anyways
plus the switch to ketotifin from Benadryl was a good move too.
I googled it: Insurance generally covers a histamine or allergy test if it is deemed medically necessary and ordered by an in-network provider to diagnose a specific condition. However, coverage, deductibles, and out-of-pocket costs vary significantly depending on your specific health plan.Key Factors for CoverageMedical Necessity: Your doctor must document clinically significant symptoms (such as unexplained hives, severe rashes, or anaphylaxis) that justify the testing.Network Status: The lab or specialist performing the test must be in-network with your insurance plan.Prior Authorization: Some insurance providers require your doctor to submit paperwork justifying the test before it gets approved.Diagnostic vs. Screening: Diagnostic testing for symptoms is typically covered under your plan's medical benefits. However, at-home genetic tests for "histamine intolerance" are usually considered non-essential and are not covered.Steps to Verify Your CoverageGet the CPT Code: Ask your doctor for the exact Current Procedural Terminology (CPT) code for the specific histamine test they plan to order.Call Your Insurance: Dial the member services number on the back of your insurance card and ask the representative if that specific CPT code is covered under your plan.Verify Provider: Confirm that the allergist, dermatologist, or laboratory performing the test is officially in-network.To get the most accurate estimate for your policy, you can check your insurer's online patient portal (for example, using tools available through Ambetter Health or Medicare).If you'd like, let me know:What symptoms you are experiencing (e.g., hives, flushing, digestive issues)The name of your insurance providerI can help you prepare the right questions to ask your doctor or insurer so you are not surprised by unexpected bills.
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