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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Cortland, NY
March 22
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A MyFibroTeam Member
March 23
A MyFibroTeam Member

You bet Trevor. It’s terribly difficult to get up in the morning. Another reason I need Ellen…I need to get up and feed her, then she wants to play “ keep away “ with me. I’m not very productive until I have 2 cups of coffee, and then she needs a walk. I must say, that when I’m feeling really bad, she knows and just snuggles next to me.

March 22
MyFibroTeam

Are you feeling extremely exhausted even after sleeping?

Yes, this is incredibly common with fibromyalgia. At least 9 in 10 people with fibromyalgia experience poor or unrefreshing sleep. Many describe waking up still feeling drained, no matter how many hours they've slept.

Why does this happen?

Sleep in fibromyalgia Show Full Answer

Are you feeling extremely exhausted even after sleeping?

Yes, this is incredibly common with fibromyalgia. At least 9 in 10 people with fibromyalgia experience poor or unrefreshing sleep. Many describe waking up still feeling drained, no matter how many hours they've slept.

Why does this happen?

Sleep in fibromyalgia isn't just lighter—it's less restorative. Brain studies show that the deep stages of sleep needed for healing and recovery are often interrupted by bursts of brain activity. Your body never fully "shuts down" to rest the way it should.

The nervous system in fibromyalgia becomes extra sensitive (called central sensitization), making it harder for your body to relax and move smoothly through normal sleep cycles. This blocks access to those deep, restorative stages of sleep.

What MyFibroTeam members say:

A MyFibroTeam member shared: "I was waking up every three hours and getting just 20 minutes of deep sleep."

Others describe feeling caught in a cycle where poor sleep heightens pain and fatigue, which then makes restful sleep even harder to achieve.

What might help:

If you still feel exhausted after a full night's sleep, talk with your doctor about a sleep study. Some people with fibromyalgia also have overlapping sleep disorders like sleep apnea or restless legs syndrome that, when treated, can bring significant relief.

March 22
A MyFibroTeam Member

All of the time, I never feel rested even if I've managed to sleep for 8 hours, which is rare x

May 19
A MyFibroTeam Member

Yes I agree 👍💯

March 23

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