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Members discussed the widespread challenge of finding healthcare providers who truly understand ME/CFS and fibromyalgia, with many sharing... Read more
To add to what @A MyFibroTeam Member said, it differentiates the additional symptoms that a person can get besides the fatigue. There are some crossover symptoms with Fibromyalgia and also with Menopause ( which I’m currently in). It makes it difficult to determine what you are experiencing. I’m following a course for menopause that encourages exercise, including cardio, which is almost impossible with CFS/ME. It makes things worse. I found this chart that shows the additional symptoms you can have with this. I have almost all of them.
Our health service is terrible here. We don't get to book aps with specialists, First you need a 10 minute ap with a G.P They have to refer you to a specialist. The waiting lists are up to 18 months then sometimes because all the doctors are either from the U.K or other countries they end up leaving before your ap and then you get a letter to let you know the specialist has left and to go back to your G.P 😂😂😂😂 you've got to laugh. It's like a big scribble
Sending healing hugs 😘😘😘💗 Peps
Thanks for clarifying what ME is. I looked at the website and while some of the symptoms are the same, I understand that ME is different than fibro. You guys are going thru a lot. Hugs to.you.
@A MyFibroTeam Member I try to walk 3 times a week if possible. I can usually only go a max of 20 minutes. In the Summer I go walk in water once a week. I can go approximately 45 minutes in the water. I’ve learned these times by trial and error. Initially I went too long and ended up down for a couple of days. I also do a lot of stretching and some squats, sometimes with 3 pound weights. I only do about 20 squats when I do this and maybe two times a week. I’ve learned that I have to try to move, but to be very aware of my limitations. I plan to try a rowing machine next. I’m very persistent. The website I go to for my menopausal symptoms discusses jumping rope and higher impact exercises for better bone health. Unfortunately, there’s really no way I can do exercises of this type.
@A MyFibroTeam Member exactly! I know why I’m fatigued all of the time. I sleep like a rock, but often feel so much fatigue about an hour after I wake up. That’s the CFS/ME talking, not sleep apnea. I will meet with this guy one more time, only because I really want to hear the results of my sleep study. After that, I think I can be done seeing him.
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